Quality of life and thalassemia in India: A scoping review

Journal of Family Medicine and Primary Care Pub Date : 2024-04-01 DOI:10.4103/jfmpc.jfmpc_1787_23

S. Chinnaiyan, Jenifer Sylvia, Sowmiya Kothandaraman, B. Palanisamy

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Abstract

ABSTRACT In recent years, a multitude of studies have been conducted to investigate the assessment of quality of life (QoL) among individuals affected by thalassemia. This scoping review aimed to examine the existing knowledge regarding the QoL and its associated factors among individuals with thalassemia in India. Databases, such as PubMed, SCOPUS, Web of Science, and the Preferred Reporting Items for Systematic Review and Meta-Analysis Extension for Scoping Reviews (PRISMA-ScR) guidelines, were searched. A total of nine articles were included in the review. The included studies mainly investigated children. The Pediatric Quality of Life Inventory (PedsQL) is the most common instrument used most often. Overall, the research findings indicate that individuals who underwent blood transfusion exhibited a lower QoL than those who did not receive blood transfusion. Additionally, it was observed that children diagnosed with thalassemia reported a lower QoL than adults. Nevertheless, the studies exhibited notable methodological deficiencies that constrained the validity and generalizability of the results. Hence, it is imperative to undertake comprehensive QoL research encompassing all regions of India and various thalassemia populations within the country to bridge this evidentiary void.

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生活质量与印度地中海贫血症：范围审查

摘要近年来，对地中海贫血患者的生活质量（QoL）评估进行了大量研究。本范围综述旨在研究印度地中海贫血患者的 QoL 及其相关因素的现有知识。研究人员检索了 PubMed、SCOPUS、Web of Science 等数据库，并参考了《系统综述和荟萃分析扩展指南》（Preferred Reporting Items for Systematic Review and Meta-Analysis Extension for Scoping Reviews，PRISMA-ScR）指南。共有九篇文章被纳入综述。纳入的研究主要以儿童为调查对象。儿科生活质量量表（PedsQL）是最常用的工具。总体而言，研究结果表明，输血者的生活质量低于未输血者。此外，研究还发现，被诊断患有地中海贫血症的儿童的 QoL 值低于成人。然而，这些研究在方法上存在明显缺陷，限制了研究结果的有效性和普遍性。因此，当务之急是对印度所有地区和国内各种地中海贫血人群进行全面的 QoL 研究，以弥补这一证据空白。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Journal of Family Medicine and Primary Care

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