Insights from Health and Social Care Professionals Supporting Children and Young Adults with a Parent Diagnosed with Dementia: An Interview Study

IF 2 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Marie Tyrrell, Andreas Jönsson, Ulrika Södergren, Ragnhild Hedman, Jonas Sandberg, Åsa Gransjön Craftman
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Abstract

Dementia is recognised as one of the major global health and social care challenges of present times. When the onset of dementia occurs in midlife, there is an increased possibility that there are children and young adults involved who are dependent on the parent concerned. The aim of the study was to describe health and social care professionals’ experiences of identifying and supporting children and young adults with a parent with dementia. A qualitative descriptive approach was carried out with individual interviews of health and social care professionals, using a semistructured interview guide. Thirteen participants in rural and urban areas in Sweden were interviewed. The overarching theme, advocating a forgotten group with three categories were identified. They combine and reflect health and social care professionals’ experiences of identifying and supporting children and young adults with a parent with dementia. Health and social care professionals who encountered children and young adults with a parent with dementia described how they were not sufficiently trained in supporting this group and identified a general shortage of available appropriate support services. The children and young adults were also described as a forgotten and overlooked group in need of affirmation and support in a more systematic way.

为父母被诊断患有痴呆症的儿童和青少年提供支持的医疗和社会护理专业人员的见解:访谈研究
痴呆症被认为是当今全球健康和社会护理方面的主要挑战之一。当痴呆症在中年发病时,子女和年轻人依赖父母的可能性就会增加。本研究旨在描述医疗和社会护理专业人员在识别和支持父母一方患有痴呆症的儿童和年轻成人方面的经验。研究采用定性描述的方法,使用半结构化访谈指南对医疗和社会护理专业人员进行个别访谈。对瑞典城乡地区的 13 名参与者进行了访谈。总的主题是倡导被遗忘的群体,并确定了三个类别。它们结合并反映了医疗和社会护理专业人员在识别和支持父母一方患有痴呆症的儿童和青少年方面的经验。遇到父母一方患有痴呆症的儿童和青少年的医疗和社会护理专业人员描述了他们如何在支持这一群体方面没有得到足够的培训,并指出可用的适当支持服务普遍不足。这些儿童和青少年也被描述为一个被遗忘和忽视的群体,他们需要得到更系统的肯定和支持。
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来源期刊
CiteScore
4.50
自引率
8.30%
发文量
423
期刊介绍: Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues
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