The Collaborative Biobank (CoBi): Donor and recipient samples & data to facilitate future research on hematopoietic cell transplantation

IF 2.2 4区医学 Q3 HEMATOLOGY

Best Practice & Research Clinical Haematology Pub Date : 2024-04-01 DOI:10.1016/j.beha.2024.101551

Claudia Spielau , Carolin Bunzel , Stefan Abert , Henning Baldauf , Alexander H. Schmidt , Johannes Schetelig

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引用次数: 0

Abstract

Biobanking provides benefit for future generations by facilitating medical research and subsequent translation and application of research findings. Long-term storage and research involving biological material and associated data necessitate the proper implementation of ethical and legal standards. A key principle includes recognizing informed consent as a crucial element for legitimizing the collection of biological material and data. Furthermore, any collected material and data must be employed exclusively for the research framework that aligns with the explicit consent provided by the participants. Last but not least, data privacy and security are essential in biobanking. This review elucidates chances and limitations of biobanking in the field of allogeneic hematopoietic cell transplantation. We discuss the practical implementation of the requirements, illustrated by the Collaborative Biobank, a collaborative research platform for research in blood cancer.

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合作生物库 (CoBi)：促进未来造血细胞移植研究的捐献者和受者样本及数据

生物银行通过促进医学研究以及研究成果的后续转化和应用，造福子孙后代。涉及生物材料和相关数据的长期储存和研究必须正确执行伦理和法律标准。其中一项关键原则是，确认知情同意是使生物材料和数据的收集合法化的关键因素。此外，任何收集到的材料和数据都必须仅用于研究框架，并与参与者提供的明确同意书相一致。最后但并非最不重要的一点是，数据隐私和安全对生物银行至关重要。本综述阐明了异基因造血细胞移植领域生物库的机会和局限性。我们以血癌研究的合作研究平台--合作生物库为例，讨论了这些要求的实际执行情况。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Best Practice & Research Clinical Haematology 医学-血液学

CiteScore

4.20

自引率

0.00%

发文量

审稿时长

35 days

期刊介绍： Best Practice & Research Clinical Haematology publishes review articles integrating the results from the latest original research articles into practical, evidence-based review articles. These articles seek to address the key clinical issues of diagnosis, treatment and patient management. Each issue follows a problem-orientated approach which focuses on the key questions to be addressed, clearly defining what is known and not known, covering the spectrum of clinical and laboratory haematological practice and research. Although most reviews are invited, the Editor welcomes suggestions from potential authors.