Homebound elderly with dementia and their family caregivers: Examining the situation in Hong Kong, Singapore, and Japan before COVID-19

Keiko Matsumoto, Misae Ito, Daphne Sze-Ki Cheung, Siok Bee Tan, Shimpei Hayashi, Masafumi Kirino
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Abstract

This study aimed to clarify the status of problematic behaviors among elderly patients with dementia at home and the associated burden on their family caregivers in Japan, Hong Kong, and Singapore immediately before the COVID-19 pandemic. The study included 563 family caregivers of elderly patients with dementia living at home in these three regions. Information regarding their demographic characteristics, such as age, gender, education level, income, marital status, and family status, was obtained. The Revised Memory and Behavior Problems Checklist, a 24-item scale for assessing problem behaviors, and the Zarit Burden Interview, a 22-item scale for measuring caregiver burden, were used alongside other relevant scales. The findings indicated that the majority of family caregivers were female and in their 60s across all three regions, while elderly patients with dementia were mostly female and living alone in their 80s. In addition, a significant proportion of these patients had comorbidities such as diabetes and other health conditions. In Japan, although the patients exhibited relatively intact physical function and a low degree of dementia, the caregivers experienced high-stress levels. The demographic profiles of family caregivers of elderly patients with dementia at home in Hong Kong, Singapore, and Japan were remarkably similar, particularly in terms of age and gender distribution. Furthermore, marital and employment statuses were comparable between Hong Kong and Singapore. While the previous studies have taken a broad view of Asia, focusing on Hong Kong, Singapore, and Japan in particular has facilitated the identification of clues for developing targeted countermeasures.
居家老年痴呆症患者及其家庭照顾者:在COVID-19之前考察香港、新加坡和日本的情况
本研究旨在阐明 COVID-19 大流行前,日本、香港和新加坡老年痴呆症患者在家中的问题行为状况及其对家庭照护者造成的相关负担。研究对象包括这三个地区的 563 名居家老年痴呆症患者的家庭护理者。研究人员了解了他们的人口统计学特征,如年龄、性别、教育程度、收入、婚姻状况和家庭状况。除其他相关量表外,还使用了用于评估问题行为的 24 项量表《修订版记忆与行为问题检查表》(Revised Memory and Behavior Problems Checklist)和用于衡量照顾者负担的 22 项量表《Zarit 负担访谈》(Zarit Burden Interview)。研究结果表明,在所有三个地区中,大多数家庭照顾者为女性,年龄在 60 多岁,而老年痴呆症患者大多为女性,独居年龄在 80 多岁。此外,这些患者中有相当一部分合并有糖尿病和其他健康问题。在日本,虽然患者的身体功能相对完好,痴呆程度较低,但照顾者的压力却很大。香港、新加坡和日本家中老年痴呆症患者的家庭照顾者的人口统计学特征非常相似,尤其是在年龄和性别分布方面。此外,香港和新加坡的婚姻和就业状况也不相上下。虽然以往的研究从广阔的视角对亚洲进行了研究,但将研究重点放在香港、新加坡和日本,有助于发现线索,从而制定有针对性的对策。
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