Exploring Psychosocial Distress in Caregivers of Children and Youth With Special Health Care Needs.

IF 1.2 4区医学 Q3 NURSING

Journal of Psychosocial Nursing and Mental Health Services Pub Date : 2024-09-01 Epub Date: 2024-04-01 DOI:10.3928/02793695-20240321-01

Régine Placide Reaves, Giovanna De Oliveira, Angel Johann Solorzano Martinez

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引用次数: 0

Abstract

Purpose: Caring for a child or youth with special health care needs (CYSHCN) can be overwhelming. Parents and caregivers may experience psychosocial distress, such as depression, frustration, and hopelessness. The purpose of the current study was to gain further insight into families' perspectives on the psychosocial impacts of caring for CYSHCN to identify gaps in health care systems and strengthen systems of support.

Method: A qualitative descriptive design was used in 16 parents and caregivers. Colaizzi's method of analysis and semi-structured interviews were used.

Results: Six themes emerged from this study: (1) Stigma and Isolation, (2) Religion as a Coping Mechanism, (3) Financial Challenges, (4) Bearing the Burden, (5) Familial Denial, and (6) System-Related Concerns.

Conclusion: Psychiatric-mental health nurses (PMHNs) are in a pivotal position to use their knowledge, skills, and experiences to guide families. PMHNs can also engage communities and enhance mental health promotion to break the stigma associated with having a CYSHCN. [Journal of Psychosocial Nursing and Mental Health Services, 62(9), 37-46.].

查看原文本刊更多论文

探索有特殊健康护理需求的儿童和青少年照顾者的社会心理压力。

目的：照顾有特殊健康护理需求的儿童或青少年（CYSHCN）可能会让人不堪重负。家长和照护者可能会经历社会心理困扰，如抑郁、沮丧和绝望。本研究的目的是进一步了解家庭对照顾有特殊健康需要的青少年的社会心理影响的看法，从而找出医疗保健系统中的不足之处并加强支持系统：对 16 名家长和照顾者进行了定性描述设计。方法：对 16 名家长和照护者进行了定性描述设计，采用了 Colaizzi 分析方法和半结构式访谈：本研究提出了六个主题：(1) 耻辱和隔离，(2) 宗教作为一种应对机制，(3) 经济挑战，(4) 承担重担，(5) 家庭否认，以及 (6) 与系统相关的担忧：精神科心理健康护士（PMHNs）在利用其知识、技能和经验指导家庭方面具有举足轻重的地位。精神心理健康护士还可以让社区参与进来，并加强心理健康宣传，以打破与儿童青少年健康问题相关的耻辱感。[社会心理护理与心理健康服务期刊》，xx（xx），xx-xx]。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Psychosocial Nursing and Mental Health Services 医学-护理

CiteScore

1.60

自引率

0.00%

发文量

117

审稿时长

6-12 weeks

期刊介绍： The Journal of Psychosocial Nursing and Mental Health Services is a peer-reviewed, monthly journal for psychosocial and mental health nurses in a variety of community and institutional settings. For more than 50 years, the Journal has provided the most up-to-date, practical information available for today’s psychosocial-mental health nurse, including short contributions about psychopharmacology, mental health care of older adults, addictive behaviors and diagnoses, and child/adolescent disorders and issues. Begin to explore the Journal and all of its great benefits such as: • Monthly feature, “Clip & Save: Drug Chart,” a one-page resource of up-to-date information on current medications for various psychiatric illnesses • Access to current articles, as well as several years of archived content • Articles posted online just 2 months after acceptance • Continuing Nursing Education credits available each month