THE LIVED EXPERIENCE OF SELECTED FILIPINO FEMALE SOLO PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER DURING A STATE OF HEALTH EMERGENCY

Jessica Chisa D. Berdan, John Mark S. Distor
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Abstract

This paper explores the lived experience of selected Filipino female solo parents raising children with autism spectrum disorder (ASD) during a state of health emergency like the COVID-19 pandemic. Employing qualitative phenomenological investigation, semi-structured interviews were conducted and analyzed using interpretative phenomenological analysis (IPA). The study employed purposive sampling and snowball techniques to gather valuable data. Results highlighted that solo parent of children with ASD encountered exacerbated difficulties, including emotional burdens, communication challenges, financial constraints, and adjustments to remote learning. They also grappled with the role of a full-time solo parent, isolation from social life, and navigating changes in social interactions. Despite these hardships, participants reported receiving support from both their immediate families and communities. They embraced protective roles for their children with ASD, adopting specialized caregiving techniques while setting boundaries and discipline. As they moved forward, these solo parents demonstrated acceptance of their childrens conditions, acquiring specialized child-rearing skills, and strengthened faith. KEYWORDS: autism spectrum disorder, COVID-19, Female solo parents, Polytechnic University of the Philippines, solo parents
自闭症谱系障碍儿童的部分菲律宾女性单亲家长在卫生紧急状态下的生活经历
本文探讨了在 COVID-19 大流行等卫生紧急状态下,选定的菲律宾女性单亲父母抚养自闭症谱系障碍(ASD)儿童的生活经历。本研究采用定性现象学调查方法,进行了半结构式访谈,并使用解释性现象分析法(IPA)进行了分析。研究采用了目的性抽样和滚雪球技术来收集有价值的数据。研究结果表明,有自闭症儿童的单亲家长遇到了更大的困难,包括情感负担、沟通挑战、经济限制和适应远程学习。他们还要努力扮演全职单亲家长的角色,与社会生活隔离,并适应社会交往的变化。尽管有这些困难,参与者们仍表示得到了直系亲属和社区的支持。他们为患有自闭症的孩子提供保护,采用专门的护理技巧,同时设定界限和纪律。在前进的道路上,这些单亲父母表现出了对孩子病情的接受,掌握了专门的育儿技能,并坚定了信念。 关键词:自闭症谱系障碍,COVID-19,女性单亲父母,菲律宾理工大学,单亲父母
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