{"title":"'It Feels Really Vulnerable and a Little Dangerous': When Words Are Not Enough.","authors":"Olivia McAnirlin","doi":"10.1080/10410236.2024.2329423","DOIUrl":null,"url":null,"abstract":"<p><p>Imagine being given the immense responsibility and gift as a researcher to deliver a person's final nature experience. People living with severe chronic obstructive pulmonary disease (COPD) are often sheltered from nature experiences due to their disease status; however, they have rich memories of past nature experiences. The goals of this overall journey of co-creation were two-fold: (1) co-create personalized nature-based utilizing immersive 360-degree virtual reality (VR) experiences based on participants' experiences in outdoor spaces; (2) utilize a narrative approach to explore the lived realities of people living with severe COPD. Throughout this collaborative research process, I made home visits, phone calls, and many trips to four people's personalized outdoor places in the Upstate of South Carolina. In doing so, I lived the experience of person-centered research. This essay focuses specifically on one participant, David, his wife and caregiver, Anne, and the co-creation of David's last virtual trip to his most cherished places in nature. Re-gifting David's last nature experience in his favorite outdoor places profoundly changed my research approach. This essay considers how I reconciled the disconnect between the \"scientific\" language used in health research and the lived experience of being a researcher during end-of-life processes, specifically attending to the terms: <i>attrition</i>, <i>participant</i>, and <i>researcher</i>.</p>","PeriodicalId":12889,"journal":{"name":"Health Communication","volume":" ","pages":"165-168"},"PeriodicalIF":3.0000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Communication","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/10410236.2024.2329423","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/3/19 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"COMMUNICATION","Score":null,"Total":0}
引用次数: 0
Abstract
Imagine being given the immense responsibility and gift as a researcher to deliver a person's final nature experience. People living with severe chronic obstructive pulmonary disease (COPD) are often sheltered from nature experiences due to their disease status; however, they have rich memories of past nature experiences. The goals of this overall journey of co-creation were two-fold: (1) co-create personalized nature-based utilizing immersive 360-degree virtual reality (VR) experiences based on participants' experiences in outdoor spaces; (2) utilize a narrative approach to explore the lived realities of people living with severe COPD. Throughout this collaborative research process, I made home visits, phone calls, and many trips to four people's personalized outdoor places in the Upstate of South Carolina. In doing so, I lived the experience of person-centered research. This essay focuses specifically on one participant, David, his wife and caregiver, Anne, and the co-creation of David's last virtual trip to his most cherished places in nature. Re-gifting David's last nature experience in his favorite outdoor places profoundly changed my research approach. This essay considers how I reconciled the disconnect between the "scientific" language used in health research and the lived experience of being a researcher during end-of-life processes, specifically attending to the terms: attrition, participant, and researcher.
期刊介绍:
As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.