'It Feels Really Vulnerable and a Little Dangerous': When Words Are Not Enough.

IF 3 3区 医学 Q1 COMMUNICATION
Health Communication Pub Date : 2025-01-01 Epub Date: 2024-03-19 DOI:10.1080/10410236.2024.2329423
Olivia McAnirlin
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引用次数: 0

Abstract

Imagine being given the immense responsibility and gift as a researcher to deliver a person's final nature experience. People living with severe chronic obstructive pulmonary disease (COPD) are often sheltered from nature experiences due to their disease status; however, they have rich memories of past nature experiences. The goals of this overall journey of co-creation were two-fold: (1) co-create personalized nature-based utilizing immersive 360-degree virtual reality (VR) experiences based on participants' experiences in outdoor spaces; (2) utilize a narrative approach to explore the lived realities of people living with severe COPD. Throughout this collaborative research process, I made home visits, phone calls, and many trips to four people's personalized outdoor places in the Upstate of South Carolina. In doing so, I lived the experience of person-centered research. This essay focuses specifically on one participant, David, his wife and caregiver, Anne, and the co-creation of David's last virtual trip to his most cherished places in nature. Re-gifting David's last nature experience in his favorite outdoor places profoundly changed my research approach. This essay considers how I reconciled the disconnect between the "scientific" language used in health research and the lived experience of being a researcher during end-of-life processes, specifically attending to the terms: attrition, participant, and researcher.

感觉真的很脆弱,有点危险":当言语不足以表达时
试想一下,作为一名研究人员,我们被赋予了巨大的责任和天赋,为一个人提供最后的自然体验。患有严重慢性阻塞性肺病(COPD)的人往往因为疾病而远离自然体验;然而,他们对过去的自然体验有着丰富的记忆。这次共同创造之旅的总体目标有两个:(1)根据参与者在户外空间的体验,共同创造基于自然的个性化沉浸式 360 度虚拟现实(VR)体验;(2)利用叙事方法探索严重慢性阻塞性肺病患者的生活现实。在整个合作研究过程中,我进行了家访、打电话,并多次前往南卡罗来纳州北部四位参与者的个性化户外场所。在此过程中,我体验了以人为本的研究。这篇文章特别关注一位参与者戴维、他的妻子兼照顾者安妮,以及戴维最后一次前往他最珍爱的自然景点的虚拟旅行。重新赋予戴维在他最喜欢的户外场所的最后一次自然体验深刻地改变了我的研究方法。这篇文章探讨了我是如何调和健康研究中使用的 "科学 "语言与生命终结过程中作为研究者的生活体验之间的脱节的,特别关注了以下术语:损耗、参与者和研究者。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
8.20
自引率
10.30%
发文量
184
期刊介绍: As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.
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