Advancing Patient-Centered Care: An International Survey of Adolescent Perspectives on Insomnia.

IF 2.2 3区 医学 Q3 CLINICAL NEUROLOGY
Behavioral Sleep Medicine Pub Date : 2024-09-01 Epub Date: 2024-03-15 DOI:10.1080/15402002.2024.2322519
Sarah M Honaker, Stacey L Simon, Kelly C Byars, Danielle M Simmons, Ariel A Williamson, Lisa J Meltzer
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引用次数: 0

Abstract

Objective: The study objective was to inform patient-centered care for adolescent insomnia by describing adolescents' perspectives on insomnia. Specific constructs of interest included: 1) factors that contributed to insomnia development or maintenance, 2) impact of insomnia on day-to-day life, 3) recommended research priorities, and 4) overall experience living with insomnia.

Method: A convenience sample of adolescents (ages 13-18 years) self-identifying with insomnia symptoms was recruited through social media. Respondents (n = 3,014) completed an online survey. Responses to an open-ended item assessing patient experience were coded using thematic analysis.

Results: Participants identified as 70.8% White non-Hispanic, 77.0% female, and lived in one of five English-speaking countries (United States, United Kingdom, Canada, Australia, or New Zealand). Most (87.5%) met DSM-V diagnostic criteria for insomnia. The most common contributory factors to insomnia endorsed were stress (72.1%) and depressed mood (63.6%), while common impact areas were mood (72.2%), focus (61.0%), and pain (49.7%). Patient-centered research priorities were identifying insomnia causes (66.4%) and early detection (66.1%). Common adolescent experiences included high distress levels, feelings of invalidation, and helplessness about their insomnia.

Conclusions: Adolescents with insomnia offer a unique perspective that should inform patient-centered research and care. There is a need for heightened screening and awareness about insomnia as a condition that causes significant distress and impairment for adolescents. To provide validating care, providers should recognize the multifaceted causes of insomnia.

推进以患者为中心的护理:青少年失眠观点国际调查》。
研究目的研究目的是通过描述青少年对失眠的看法,为青少年失眠症患者提供以患者为中心的护理。具体的研究内容包括1)导致失眠发生或维持的因素;2)失眠对日常生活的影响;3)建议的研究重点;4)失眠患者的总体生活体验:方法:通过社交媒体对自我认同有失眠症状的青少年(13-18 岁)进行抽样调查。受访者(n = 3,014)完成了一项在线调查。采用主题分析法对评估患者体验的开放式项目的回复进行了编码:参与者中 70.8% 为非西班牙裔白人,77.0% 为女性,居住在五个英语国家之一(美国、英国、加拿大、澳大利亚或新西兰)。大多数人(87.5%)符合 DSM-V 的失眠诊断标准。最常见的失眠诱因是压力(72.1%)和抑郁情绪(63.6%),常见的影响因素是情绪(72.2%)、注意力(61.0%)和疼痛(49.7%)。以患者为中心的研究重点是确定失眠原因(66.4%)和早期发现(66.1%)。青少年的共同经历包括高度痛苦、失效感以及对失眠的无助感:青少年失眠症患者提供了一个独特的视角,应该为以患者为中心的研究和护理提供参考。需要加强对失眠症的筛查,并提高对失眠症的认识,因为失眠症会给青少年带来严重的困扰和损害。为了提供有效的护理,医疗服务提供者应认识到导致失眠的多方面原因。
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来源期刊
Behavioral Sleep Medicine
Behavioral Sleep Medicine CLINICAL NEUROLOGY-PSYCHIATRY
CiteScore
7.20
自引率
3.20%
发文量
49
审稿时长
>12 weeks
期刊介绍: Behavioral Sleep Medicine addresses behavioral dimensions of normal and abnormal sleep mechanisms and the prevention, assessment, and treatment of sleep disorders and associated behavioral and emotional problems. Standards for interventions acceptable to this journal are guided by established principles of behavior change. Intending to serve as the intellectual home for the application of behavioral/cognitive science to the study of normal and disordered sleep, the journal paints a broad stroke across the behavioral sleep medicine landscape. Its content includes scholarly investigation of such areas as normal sleep experience, insomnia, the relation of daytime functioning to sleep, parasomnias, circadian rhythm disorders, treatment adherence, pediatrics, and geriatrics. Multidisciplinary approaches are particularly welcome. The journal’ domain encompasses human basic, applied, and clinical outcome research. Behavioral Sleep Medicine also embraces methodological diversity, spanning innovative case studies, quasi-experimentation, randomized trials, epidemiology, and critical reviews.
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