The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children's Hospitals Neonatal Consortium Report.

IF 1.5 4区 医学 Q3 OBSTETRICS & GYNECOLOGY
American journal of perinatology Pub Date : 2024-10-01 Epub Date: 2024-03-08 DOI:10.1055/a-2283-8843
Vilmaris Quiñones Cardona, Susan S Cohen, Noah Cook, Mehmet N Cizmeci, Amit Chandel, Robert DiGeronimo, Semsa Gogcu, Eni Jano, Katsuaki Kojima, Kyong-Soon Lee, Ryan M McAdams, Ogechukwu Menkiti, Ulrike Mietzsch, Eric Peeples, Elizabeth Sewell, Jeffrey S Shenberger, An N Massaro, Girija Natarajan, Rakesh Rao, Maria L V Dizon
{"title":"The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children's Hospitals Neonatal Consortium Report.","authors":"Vilmaris Quiñones Cardona, Susan S Cohen, Noah Cook, Mehmet N Cizmeci, Amit Chandel, Robert DiGeronimo, Semsa Gogcu, Eni Jano, Katsuaki Kojima, Kyong-Soon Lee, Ryan M McAdams, Ogechukwu Menkiti, Ulrike Mietzsch, Eric Peeples, Elizabeth Sewell, Jeffrey S Shenberger, An N Massaro, Girija Natarajan, Rakesh Rao, Maria L V Dizon","doi":"10.1055/a-2283-8843","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong> This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers.</p><p><strong>Study design: </strong> This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children's Hospitals Neonatal Consortium (CHNC).</p><p><strong>Results: </strong> Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26-36). Median duration was 3 years (range 2-18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available.</p><p><strong>Conclusion: </strong> NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.</p><p><strong>Key points: </strong>· Neonatal NDFU clinics help transition high-risk infants home.. · Interdisciplinary neonatal intensive care unit follow-up brings together previously separated outpatient service lines.. · This study reviews the current state of neonatal NDFU in North America..</p>","PeriodicalId":7584,"journal":{"name":"American journal of perinatology","volume":" ","pages":"1956-1964"},"PeriodicalIF":1.5000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"American journal of perinatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1055/a-2283-8843","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/3/8 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"OBSTETRICS & GYNECOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Objective:  This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers.

Study design:  This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children's Hospitals Neonatal Consortium (CHNC).

Results:  Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26-36). Median duration was 3 years (range 2-18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available.

Conclusion:  NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.

Key points: · Neonatal NDFU clinics help transition high-risk infants home.. · Interdisciplinary neonatal intensive care unit follow-up brings together previously separated outpatient service lines.. · This study reviews the current state of neonatal NDFU in North America..

北美新生儿神经发育随访计划现状:儿童医院新生儿联盟报告》。
研究目的确定各学术中心的新生儿神经发育随访(NDFU)做法:研究设计:横断面调查,针对儿童医院新生儿联盟内各中心的新生儿神经发育随访(NDFU)实践:结果:调查回复率为 76%,97% 的受访者有正式的 NDFU 计划。项目通常由新生儿科医生(80%)、理疗师(77%)和执业护士(74%)负责。接受随访的婴儿出生时的中位胎龄≤32周(26-36周不等)。持续时间中位数为 3 年(2-18 年不等)。97%的研究机构使用贝利婴幼儿发展量表,但不同年龄段使用的工具有所不同。43%的研究机构在离散的电子数据字段中记录分数。63%的机构收集了健康的社会决定因素数据。护理协调和远程保健服务并未普及:结论:NDFU诊所在CHNC中心几乎普遍存在。实践中的共性和差异凸显了数据共享和发展最佳实践的机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
American journal of perinatology
American journal of perinatology 医学-妇产科学
CiteScore
5.90
自引率
0.00%
发文量
302
审稿时长
4-8 weeks
期刊介绍: The American Journal of Perinatology is an international, peer-reviewed, and indexed journal publishing 14 issues a year dealing with original research and topical reviews. It is the definitive forum for specialists in obstetrics, neonatology, perinatology, and maternal/fetal medicine, with emphasis on bridging the different fields. The focus is primarily on clinical and translational research, clinical and technical advances in diagnosis, monitoring, and treatment as well as evidence-based reviews. Topics of interest include epidemiology, diagnosis, prevention, and management of maternal, fetal, and neonatal diseases. Manuscripts on new technology, NICU set-ups, and nursing topics are published to provide a broad survey of important issues in this field. All articles undergo rigorous peer review, with web-based submission, expedited turn-around, and availability of electronic publication. The American Journal of Perinatology is accompanied by AJP Reports - an Open Access journal for case reports in neonatology and maternal/fetal medicine.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信