Efficiency of the Technology-Based “HomeCARE-Family EmPow” for Children with Cancer and Their Parents: A Study Protocol for a Randomized Controlled Trial

IF 2.3 4区 医学 Q1 NURSING
Hazal Ozdemir Koyu, Ebru Kilicarslan
{"title":"Efficiency of the Technology-Based “HomeCARE-Family EmPow” for Children with Cancer and Their Parents: A Study Protocol for a Randomized Controlled Trial","authors":"Hazal Ozdemir Koyu,&nbsp;Ebru Kilicarslan","doi":"10.1016/j.soncn.2024.151616","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>Home-based pediatric cancer care requires addressing both physical and psychosocial care needs for children and their parents Currently, there is a notable gap in intervention programs that evaluate technology-based psychosocial empowerment for children and parents in home-based pediatric cancer care. The study protocol was to assess the efficiency of a technology-based psychosocial empowerment intervention for home-based care for children with cancer and their parents.</p></div><div><h3>Methods</h3><p>This study was planned as a single-blinded parallel-group randomized controlled experimental design. The study was intended to include 64 children and parents in the research sample. The HomeCare-Family EmPow is a technology-based intervention based on the Psychological Empowerment Theory. This 4-week program, delivered via the website, consists of four modules for parents and two for children. The descriptive form, Self-Efficacy Scale- for children and adolescents with cancer, State-Trait Anxiety Inventory, and Pediatric Cancer Coping Scale will be used in the data collection for children. The descriptive form, Self-Efficacy Scale, Problem-Solving Inventory, and Psychological Resilience Scale will be used for parents. Repeated measures analysis of variance and linear mixed-effects models will be applied for intragroup and intergroup comparisons. Outcome measures will be assessed before randomization, 1 week after the intervention, and 1 month after.</p></div><div><h3>Results</h3><p>The possible differences between the intervention and control groups will be evaluated after the implementation of the intervention. Our proposed hypotheses will report the findings.</p></div><div><h3>Conclusions</h3><p>This research may provide a more comprehensive and evidence-based approach to pediatric cancer management at home-based pediatric cancer management by improving children's and parents' self-efficacy and coping by providing feasible, accessible, and innovative support.</p></div><div><h3>Implications for Nursing Practice</h3><p>The study outcomes are expected to enrich the understanding and management of the psychosocial well-being of children and their parents and empower them to cope with the treatment process more effectively during home-based care.</p></div>","PeriodicalId":54253,"journal":{"name":"Seminars in Oncology Nursing","volume":null,"pages":null},"PeriodicalIF":2.3000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Seminars in Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S074920812400055X","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0

Abstract

Objectives

Home-based pediatric cancer care requires addressing both physical and psychosocial care needs for children and their parents Currently, there is a notable gap in intervention programs that evaluate technology-based psychosocial empowerment for children and parents in home-based pediatric cancer care. The study protocol was to assess the efficiency of a technology-based psychosocial empowerment intervention for home-based care for children with cancer and their parents.

Methods

This study was planned as a single-blinded parallel-group randomized controlled experimental design. The study was intended to include 64 children and parents in the research sample. The HomeCare-Family EmPow is a technology-based intervention based on the Psychological Empowerment Theory. This 4-week program, delivered via the website, consists of four modules for parents and two for children. The descriptive form, Self-Efficacy Scale- for children and adolescents with cancer, State-Trait Anxiety Inventory, and Pediatric Cancer Coping Scale will be used in the data collection for children. The descriptive form, Self-Efficacy Scale, Problem-Solving Inventory, and Psychological Resilience Scale will be used for parents. Repeated measures analysis of variance and linear mixed-effects models will be applied for intragroup and intergroup comparisons. Outcome measures will be assessed before randomization, 1 week after the intervention, and 1 month after.

Results

The possible differences between the intervention and control groups will be evaluated after the implementation of the intervention. Our proposed hypotheses will report the findings.

Conclusions

This research may provide a more comprehensive and evidence-based approach to pediatric cancer management at home-based pediatric cancer management by improving children's and parents' self-efficacy and coping by providing feasible, accessible, and innovative support.

Implications for Nursing Practice

The study outcomes are expected to enrich the understanding and management of the psychosocial well-being of children and their parents and empower them to cope with the treatment process more effectively during home-based care.

基于技术的 "HomeCARE-Family EmPow "对癌症儿童及其父母的疗效:随机对照试验研究方案》。
目标:目前,在评估以技术为基础的儿科癌症居家护理中儿童和家长社会心理赋权干预项目方面存在明显差距。研究方案旨在评估基于技术的社会心理赋权干预措施对癌症儿童及其父母家庭护理的效率:本研究计划采用单盲平行组随机对照实验设计。研究计划将 64 名儿童和家长纳入研究样本。HomeCare-Family EmPow 是基于心理授权理论的技术干预。该项目为期 4 周,通过网站实施,包括 4 个针对家长的模块和 2 个针对儿童的模块。在为儿童收集数据时,将使用描述性表格、儿童和青少年癌症患者自我效能量表、状态-特质焦虑量表和儿童癌症应对量表。家长将使用描述性表格、自我效能量表、问题解决量表和心理复原力量表。重复测量方差分析和线性混合效应模型将用于组内和组间比较。结果测量将在随机化前、干预后一周和一个月后进行评估:结果:干预实施后,将评估干预组和对照组之间可能存在的差异。我们提出的假设将报告研究结果:本研究通过提供可行、可及、创新的支持,提高儿童和家长的自我效能感和应对能力,从而为居家儿科癌症管理提供更全面的循证方法:研究结果有望丰富对儿童及其父母社会心理健康的理解和管理,并增强他们的能力,使其在家庭护理期间更有效地应对治疗过程。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Seminars in Oncology Nursing
Seminars in Oncology Nursing Nursing-Oncology (nursing)
CiteScore
3.40
自引率
0.00%
发文量
68
审稿时长
45 days
期刊介绍: Seminars in Oncology Nursing is a unique international journal published six times a year. Each issue offers a multi-faceted overview of a single cancer topic from a selection of expert review articles and disseminates oncology nursing research relevant to patient care, nursing education, management, and policy development.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信