Managing pediatric-onset multiple sclerosis in an austere setting: A case report.

IF 3.5 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Journal of Telemedicine and Telecare Pub Date : 2025-07-01 Epub Date: 2024-02-29 DOI:10.1177/1357633X241235701
Josephine U Pierce Pucci, Heather M Soloria, Philip G Eye
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引用次数: 0

Abstract

Pediatric-onset multiple sclerosis (POMS) is the most common demyelinating disease in children. Patients suffer from physical disability, cognitive impairment, and psychosocial challenges. Management requires a multidisciplinary care team. Here we present a case of an 11-year-old boy with POMS who relocated to Guam prior to initiation of a disease-modifying treatment and who experienced a flare without immediate access to an MRI or a child neurologist. Care required the combined efforts of ophthalmology, pediatrics, and emergency medicine in Guam, real-time remote guidance by child neurology, and asynchronous collaboration with cardiology and child neurology. As a result, the immediate flare was accurately diagnosed and treated with steroids, the patient was started on Fingolimod, and an emergency management plan for future flares was constructed. This case illustrates the nuances of both the acute and chronic management of multiple sclerosis in a resource-limited setting and how a combination of synchronous and asynchronous telemedicine was able to achieve a satisfactory treatment plan.

在艰苦环境中治疗小儿多发性硬化症:病例报告。
小儿多发性硬化症(POMS)是儿童中最常见的脱髓鞘疾病。患者患有肢体残疾、认知障碍和社会心理障碍。治疗需要一个多学科护理团队。我们在此介绍一例患有POMS的11岁男孩的病例,他在开始接受改变病情的治疗之前搬到了关岛,在无法立即接受核磁共振成像检查或看儿童神经科医生的情况下,病情突然复发。治疗需要关岛眼科、儿科和急诊科的共同努力,儿童神经科的实时远程指导,以及心脏科和儿童神经科的异步协作。结果,患者的病情立即得到了准确诊断,并接受了类固醇治疗,开始服用芬戈莫德,同时还制定了针对未来病情发作的应急管理计划。这个病例说明了在资源有限的环境中,多发性硬化症的急性和慢性管理存在着细微差别,而同步和异步远程医疗的结合又是如何实现令人满意的治疗方案的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
14.10
自引率
10.60%
发文量
174
审稿时长
6-12 weeks
期刊介绍: Journal of Telemedicine and Telecare provides excellent peer reviewed coverage of developments in telemedicine and e-health and is now widely recognised as the leading journal in its field. Contributions from around the world provide a unique perspective on how different countries and health systems are using new technology in health care. Sections within the journal include technology updates, editorials, original articles, research tutorials, educational material, review articles and reports from various telemedicine organisations. A subscription to this journal will help you to stay up-to-date in this fast moving and growing area of medicine.
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