Sensitive Data Detection with High-Throughput Machine Learning Models in Electrical Health Records.

AMIA ... Annual Symposium proceedings. AMIA Symposium Pub Date : 2024-01-11 eCollection Date: 2023-01-01
Kai Zhang, Xiaoqian Jiang
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Abstract

In the era of big data, there is an increasing need for healthcare providers, communities, and researchers to share data and collaborate to improve health outcomes, generate valuable insights, and advance research. The Health Insurance Portability and Accountability Act of 1996 (HIPAA) is a federal law designed to protect sensitive health information by defining regulations for protected health information (PHI). However, it does not provide efficient tools for detecting or removing PHI before data sharing. One of the challenges in this area of research is the heterogeneous nature of PHI fields in data across different parties. This variability makes rule-based sensitive variable identification systems that work on one database fail on another. To address this issue, our paper explores the use of machine learning algorithms to identify sensitive variables in structured data, thus facilitating the de-identification process. We made a key observation that the distributions of metadata of PHI fields and non-PHI fields are very different. Based on this novel finding, we engineered over 30 features from the metadata of the original features and used machine learning to build classification models to automatically identify PHI fields in structured Electronic Health Record (EHR) data. We trained the model on a variety of large EHR databases from different data sources and found that our algorithm achieves 99% accuracy when detecting PHI-related fields for unseen datasets. The implications of our study are significant and can benefit industries that handle sensitive data.

利用高通量机器学习模型检测电子健康记录中的敏感数据。
在大数据时代,医疗服务提供者、社区和研究人员越来越需要共享数据并开展合作,以改善医疗效果、产生有价值的见解并推进研究。1996 年《健康保险可携性与责任法案》(HIPAA)是一部联邦法律,旨在通过对受保护健康信息(PHI)的规定来保护敏感的健康信息。然而,该法并未提供在数据共享前检测或删除 PHI 的有效工具。这一研究领域面临的挑战之一是不同各方数据中 PHI 字段的异质性。这种差异性使得基于规则的敏感变量识别系统在一个数据库中工作时,在另一个数据库中就会失效。为了解决这个问题,我们的论文探讨了使用机器学习算法来识别结构化数据中的敏感变量,从而促进去身份化过程。我们发现了一个重要现象,即 PHI 字段和非 PHI 字段的元数据分布非常不同。基于这个新发现,我们从原始特征的元数据中提取了 30 多个特征,并使用机器学习建立分类模型,以自动识别结构化电子病历 (EHR) 数据中的 PHI 字段。我们在来自不同数据源的各种大型电子病历数据库上对模型进行了训练,发现我们的算法在检测未见数据集的 PHI 相关字段时准确率达到 99%。我们的研究意义重大,可使处理敏感数据的行业受益。
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