{"title":"Caring burden and quality of life among the caregivers of people living with dementia - a cross-sectional study in Udupi district of Karnataka.","authors":"Clarita Shynal Martis, Rajeshkrishna Panambur Bhandary, Ramesh Chandrababu, Vani Lakshmi R, Panambur Venkataraya Bhandary, Judith Angelitta Noronha, Jyothi Chakrabarty, Debbie Tolson, Elsa Sanatombi Devi","doi":"10.1080/01621424.2023.2301417","DOIUrl":null,"url":null,"abstract":"<p><p>Dementia is a chronic disorder of the brain that affects cognitive performance. The caregivers of individuals with dementia experience a greater burden that affects their Quality of Life (QoL). This cross-sectional study conducted in India was designed to assess the caring burden and QoL among the caregivers of people with dementia, as well as to ascertain the relationship between QoL scores and burden. Our sample included 80 caregivers of people with dementia. Most of the caregivers (<i>n</i> = 59, 73.8%) had a higher level of caregiver burden. There was a negative correlation between caregiver burden scores and QoL. A higher level of caregiver stress and low QoL were experienced by caregivers of dementia patients. In developing countries like India, counseling, and education on home health care for people with dementia should be provided to reduce the burden and enhance the QoL of caregivers.</p>","PeriodicalId":45875,"journal":{"name":"HOME HEALTH CARE SERVICES QUARTERLY","volume":null,"pages":null},"PeriodicalIF":1.2000,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"HOME HEALTH CARE SERVICES QUARTERLY","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1080/01621424.2023.2301417","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/8 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"HEALTH POLICY & SERVICES","Score":null,"Total":0}
引用次数: 0
Abstract
Dementia is a chronic disorder of the brain that affects cognitive performance. The caregivers of individuals with dementia experience a greater burden that affects their Quality of Life (QoL). This cross-sectional study conducted in India was designed to assess the caring burden and QoL among the caregivers of people with dementia, as well as to ascertain the relationship between QoL scores and burden. Our sample included 80 caregivers of people with dementia. Most of the caregivers (n = 59, 73.8%) had a higher level of caregiver burden. There was a negative correlation between caregiver burden scores and QoL. A higher level of caregiver stress and low QoL were experienced by caregivers of dementia patients. In developing countries like India, counseling, and education on home health care for people with dementia should be provided to reduce the burden and enhance the QoL of caregivers.
痴呆症是一种影响认知能力的慢性脑部疾病。痴呆症患者的照顾者会承受更大的负担，从而影响他们的生活质量（QoL）。这项在印度进行的横断面研究旨在评估痴呆症患者护理者的护理负担和 QoL，并确定 QoL 分数与负担之间的关系。我们的样本包括 80 名痴呆症患者的护理者。大多数照护者（n = 59，73.8%）的照护负担较重。照顾者负担得分与 QoL 之间呈负相关。痴呆症患者的护理者承受着较高的护理压力，生活质量较低。在印度等发展中国家，应为痴呆症患者提供有关家庭医疗护理的咨询和教育，以减轻护理者的负担并提高其生活质量。
期刊介绍：
Home Health Care Services Quarterly continues to publish important research on the cutting edge of home care and alternatives to long-term institutional care for the elderly, disabled, and other population groups that use in-home health care and other community services. The journal is aimed toward service providers and health care specialists involved with health care financing, evaluation of services, organization of services, and public policy issues.
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