Poster (Knowledge Generation) ID 2001062

IF 2.4 Q1 REHABILITATION
A. Richard-Denis, H. Hong, A. Dionne, M. Guidea, JM Mac-Thiong
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引用次数: 0

Abstract

Research participation for individuals with spinal cord injury (SCI) is important to develop and receive promising interventions. It has been suggested that consenting to participate may also be associated with improved long-term outcomes. The objectives of this study are twofold and consisted of 1) verifying whether consenting to participate in a national SCI registry is associated with improved outcomes, and 2) determining predictors of enrolling in the registry. This population-based retrospective cohort study was performed on 3854 individuals with acute traumatic SCI approached to participate in the Canadian patient registry (Rick Hansen SCI Registry) between 2014 and 2019. The status of consent (consent vs. declined/withdrew) consisted in the main independent variable. Outcomes included length of stay, in-hospital mortality, discharge destination, occurrence of complications. Multivariable analyses were performed to identify predictors of consenting and its association with each outcome, while accounting for important covariables (demographic-, trauma- and institution-related). 2998 individuals provided consent and 856 individuals declined/withdrew. Older age at injury and living farther away was associated with decreased likelihood for enrollment. While adjusting for covariables, declining participation was associated with increased acute length of stay, higher incidence of acute complications during acute care and decrease likelihood of being discharged home. Approximately 20% of individuals declined participation in a national registry following an acute SCI, particularly elderly individuals and those living away from the hospital. It is possible that engagement in care and/or care delivery was altered for these individuals, leading to poorer patient outcomes. Enhanced opportunities should be given to subgroups not inclined to participate in research to optimize inclusivity in care delivery, therefore improving outcomes.
海报(知识生成) ID 2001062
脊髓损伤(SCI)患者参与研究对于开发和接受有前景的干预措施非常重要。有研究表明,同意参与研究也可能与长期结果的改善有关。本研究的目标有两个,包括:1)验证同意参加全国 SCI 登记是否与改善预后有关;2)确定参加登记的预测因素。 这项基于人群的回顾性队列研究是针对2014年至2019年期间3854名急性外伤性SCI患者进行的,他们都同意参加加拿大患者登记处(Rick Hansen SCI登记处)。同意状态(同意与拒绝/不同意)是主要的自变量。结果包括住院时间、院内死亡率、出院目的地、并发症发生率。研究人员进行了多变量分析,以确定同意的预测因素及其与各项结果的关联,同时考虑到重要的协变量(人口、创伤和机构相关变量)。 共有 2998 人表示同意,856 人拒绝/放弃。受伤时年龄较大和居住地较远的人加入的可能性较低。在对共变量进行调整后,拒绝参与与急性期住院时间延长、急性期并发症发生率增加以及出院回家的可能性降低有关。 约有 20% 的人在急性 SCI 后拒绝参与全国登记,尤其是老年人和住在医院以外的人。对这些人来说,参与护理和/或提供护理的方式可能会发生改变,从而导致患者预后较差。应为不愿意参与研究的亚群体提供更多机会,以优化护理服务的包容性,从而改善预后。
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来源期刊
CiteScore
3.20
自引率
3.40%
发文量
33
期刊介绍: Now in our 22nd year as the leading interdisciplinary journal of SCI rehabilitation techniques and care. TSCIR is peer-reviewed, practical, and features one key topic per issue. Published topics include: mobility, sexuality, genitourinary, functional assessment, skin care, psychosocial, high tetraplegia, physical activity, pediatric, FES, sci/tbi, electronic medicine, orthotics, secondary conditions, research, aging, legal issues, women & sci, pain, environmental effects, life care planning
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