Ujjoyinee Barua, Jeffery Holmes, E. Loh, R. Teasell, K. Sequeira, D. Wolfe, S. Mehta
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引用次数: 0
Abstract
Spinal cord injuries (SCI) have a devastating effect on individuals incurring this life-changing event; however, it can also affect those integrally involved in their care. Family caregivers often experience negative outcomes, including high levels of burden, leading to decreased psychological well-being. Cognitive behavioural therapy is the most evidence-based treatment to help people identify and modify thoughts and behaviours contributing to their mental health concerns. However, several resource limitations exist. Guided internet-delivered cognitive behaviour therapy (ICBT) offers an evidence-based and accessible approach to psychosocial service delivery. ICBT improved psychosocial outcomes, including depression among persons with chronic health conditions. However, the efficacy of ICBT has yet to be evaluated among these caregivers. We present the protocol of the Well-being Care Partners Program, a 10-week clinician-guided ICBT program tailored for SCI caregivers to improve their well-being. The program was developed through participatory action research involving seven expert members (i.e., clinicians, people with lived experiences). We aim to recruit 30 participants to pilot this program. Participants will complete measures at baseline, post-intervention, and three months post-intervention. The primary outcome will be feasibility assessed through acceptability and limited efficacy (i.e., depression, anxiety, caregiver burden) as suggested by Bowen’s feasibility framework. This is one of the first pilot trials to test the feasibility, acceptability, and efficacy of a guided ICBT program for SCI caregivers. ICBT is designed to deliver an evidence-based intervention to overcome face-to-face therapy barriers and reach a wider group of patients, including those who might experience difficulties accessing health care.
期刊介绍:
Now in our 22nd year as the leading interdisciplinary journal of SCI rehabilitation techniques and care. TSCIR is peer-reviewed, practical, and features one key topic per issue. Published topics include: mobility, sexuality, genitourinary, functional assessment, skin care, psychosocial, high tetraplegia, physical activity, pediatric, FES, sci/tbi, electronic medicine, orthotics, secondary conditions, research, aging, legal issues, women & sci, pain, environmental effects, life care planning