RESEARCH OF THE QUALITY OF LIFE OF PATIENTS WITH DIABETIC RETINOPATHY

Hanna S. Zdelova
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Abstract

The aim of the research: To determine effective techniques for researching the quality of life of patients with diabetic retinopathy, conduct surveys, and analyze the obtained results. Materials and Methods: Bibliosemantic and analytical methods, sociological and statistical methods were employed. A standardized quality of life questionnaire, SF-36, was used. The study population consisted of 30 outpatient patients (22 females and 8 males) who are affiliated with the State Institution of Science «Research and Practical Center of Preventive and Clinical Medicine» State Administrative Department, suffering from diabetes with diabetic retinopathy. Results and Discussion: In medical practice, "health-related quality of life" (HRQL) refers to the comprehensive characterization of a patient's physical, psychological, social, and emotional well-being, as assessed based on their subjective perception. Key requirements for modern questionnaires include universality, reliability, sensitivity to changes in the health status of each patient, reproducibility, and ease of use. Additionally, these questionnaires should be standardized, meaning they have a consistent set of standard questions and response options for all respondents, and they should allow for quantitative assessment of psychophysical well-being. In Europe, the most commonly used general-type questionnaire is the EuroQol (EQ-5D), while in the United States, the American questionnaire SF-36 and its variations (SF-22, SF-20, SF-12) are widely recognized. During our research, the assessment of health-related quality of life (HRQL) was conducted using the SF-36 questionnaire, which patients filled out by hand. The study population consisted of 30 outpatient patients (22 females and 8 males) suffering from diabetes with diabetic retinopathy of the second and third degree of severity (preproliferative and proliferative). Conclusions: The only element of self-perception of the disease that was found to be prognostically favorable for health-related quality of life (HRQL) is anosognostic attitudes oriented towards continuing an active way of life and a drive for self-realization. The pronounced maladaptive component of self-perception of the disease is associated with a decrease in HRQL both overall and in specific areas. It is not excluded that the tendency to attach excessive significance to the disease creates a favorable ground for the emergence of emotional problems and the development of intra- and interpersonal conflicts, both related and unrelated to the illness.
糖尿病视网膜病变患者的生活质量研究
研究目的确定研究糖尿病视网膜病变患者生活质量的有效技术,开展调查,并对所得结果进行分析。 材料与方法:采用文献学和分析方法、社会学和统计学方法。采用标准化的生活质量问卷 SF-36。研究对象包括 30 名门诊患者(22 名女性和 8 名男性),他们均隶属于国家科学机构 "预防和临床医学研究与实践中心 "国家行政部门,患有糖尿病并伴有糖尿病视网膜病变。 结果与讨论在医疗实践中,"与健康相关的生活质量"(HRQL)是指根据患者的主观感受对其身体、心理、社会和情感幸福感进行评估的综合表征。 现代问卷的主要要求包括普遍性、可靠性、对每位患者健康状况变化的敏感性、可重复性和易用性。此外,这些问卷还应该标准化,即对所有受访者都有一套统一的标准问题和回答选项,并能对心理生理健康状况进行定量评估。在欧洲,最常用的通用型问卷是 EuroQol(EQ-5D),而在美国,美国问卷 SF-36 及其变体(SF-22、SF-20、SF-12)已得到广泛认可。 在我们的研究中,对健康相关生活质量(HRQL)的评估采用的是 SF-36 问卷,由患者手工填写。研究对象包括 30 名门诊患者(22 名女性和 8 名男性),他们都患有糖尿病,且糖尿病视网膜病变的严重程度为二度和三度(增殖前和增殖期)。 研究结论研究发现,对疾病的自我认知中唯一对健康相关生活质量(HRQL)有利的预后因素是对疾病的否认态度,即继续积极的生活方式和自我实现的动力。对疾病的自我认知存在明显的适应不良成分,这与总体和特定领域的 HRQL 下降有关。不排除过分重视疾病的倾向为情绪问题的出现以及与疾病相关或无关的内部和人际冲突的发展创造了有利条件。
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