Supporting the Development of Competences Necessary for the Independent Living of People With Profound Disorders of Intellectual Development: An Empirical Study

Monika Adamczyk, Piotr Majewicz, Jakub Wolny
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Abstract

Objectives of the research: The goal of the research was to identify the type and extent of activities that special education facilities engage in to teach and promote independence in people with profound disorders of intellectual development. Research methods: Empirical material was collected using the author’s original online questionnaire, which consisted of 30 questions measuring the extent to which students’ needs for developing independent living skills are met. The survey was conducted among special education teachers (N=642) from seven European countries (Portugal, Spain, Belgium, Poland, Bulgaria, Romania, and Turkey). A short description of the context of the issue: Independent living is widely seen as an immanent attribute of adulthood. Children and adolescents are prepared for independent living through the process of upbringing and socialization; people with disabilities are additionally prepared through rehabilitation. For people with a profound disorder of intellectual development, independent living is challenging but possible with the right support. Research findings: The results indicate that in the course of developing independent living skills in people with profound disorders of intellectual development, efforts are mainly made to improve their self-management skills and democratic management methods in both team work and individual work. Conclusions and recommendations: In the surveyed countries, there is a tendency to limit work for developing independent living skills to a single type of intervention. Rarely are two or three methods – not to mention four – simultaneously used to stimulate the development of independent living skills. It is therefore necessary to call for increased efforts to promote independent living among people with profound disorders of intellectual development and to focus this support on autonomy, self-determination, achieving quality of life goals, and, above all, the ability to make decisions – since this is what determines true independence in life.
支持智力发育严重障碍者发展独立生活所需的能力:实证研究
研究目标:研究的目的是确定特殊教育机构为教育和促进智力发育极度障碍者的独立性而开展的活动的类型和程度。 研究方法:使用作者原创的在线问卷收集经验材料,该问卷由 30 个问题组成,衡量学生发展独立生活技能的需求在多大程度上得到满足。调查对象是来自七个欧洲国家(葡萄牙、西班牙、比利时、波兰、保加利亚、罗马尼亚和土耳其)的特殊教育教师(N=642)。 问题背景简述:人们普遍认为,独立生活是成年的必然属性。儿童和青少年通过成长和社会化过程为独立生活做好准备;残疾人则通过康复做好准备。对于智力发展严重失调的人来说,独立生活具有挑战性,但如果有适当的支持,还是有可能实现的。 研究结果:研究结果表明,在培养智力发育严重障碍者独立生活能力的过程中,主要是在团队工作和个人工作中努力提高他们的自我管理能力和民主管理方法。 结论和建议:在所调查的国家中,培养独立生活能力的工作往往局限于单一类型的干预。很少同时采用两种或三种方法(更不用说四种方法)来促进独立生活能力的发展。因此,有必要呼吁加大力度,促进智力发育极度障碍者的独立生活,并将这种支持的重点放在自主、自决、实现生活质量目标,尤其是决策能力上--因为这才是生活中真正独立的决定因素。
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