{"title":"The Reality of Vulnerable Research: Honoring Humanness Amid a Pandemic","authors":"Rebekka Dieterich-Hartwell, Rosie Davis Aubrey","doi":"10.1007/s10465-023-09393-6","DOIUrl":null,"url":null,"abstract":"<div><p>This article describes the journey of a health equity research study that changed course due to challenges associated with the COVID-19 pandemic and the precarity of the population of focus. Although the mixed methods intervention and dance/movement therapy protocol did not transpire as intended, we gained much relevant insight from the 12-month process. We here highlight the original six-week protocol, recruitment efforts and important clinical observations during the recruitment phase, as well as a detailed synopsis in form of a case study of the one participant who completed the study. We also take a critical look at the limitations of clinical human research and raise the question when to pivot from or abort a project, keeping in mind what ultimately matters, the respect, value, and care of an individual. We close with implications for engaging in research with vulnerable communities.</p></div>","PeriodicalId":44552,"journal":{"name":"AMERICAN JOURNAL OF DANCE THERAPY","volume":"46 1","pages":"12 - 33"},"PeriodicalIF":0.8000,"publicationDate":"2023-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"AMERICAN JOURNAL OF DANCE THERAPY","FirstCategoryId":"1085","ListUrlMain":"https://link.springer.com/article/10.1007/s10465-023-09393-6","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PSYCHOLOGY, MULTIDISCIPLINARY","Score":null,"Total":0}
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Abstract
This article describes the journey of a health equity research study that changed course due to challenges associated with the COVID-19 pandemic and the precarity of the population of focus. Although the mixed methods intervention and dance/movement therapy protocol did not transpire as intended, we gained much relevant insight from the 12-month process. We here highlight the original six-week protocol, recruitment efforts and important clinical observations during the recruitment phase, as well as a detailed synopsis in form of a case study of the one participant who completed the study. We also take a critical look at the limitations of clinical human research and raise the question when to pivot from or abort a project, keeping in mind what ultimately matters, the respect, value, and care of an individual. We close with implications for engaging in research with vulnerable communities.
期刊介绍：
American Journal of Dance Therapy informs the international mental health community on the latest findings in dance/movement therapy theory, research, and clinical practice by presenting original contributions, case material, reviews, and studies by leading practitioners and educators in the field. The journal, reflecting the dramatic expansion of the profession over the last half-century, publishes timely articles on working with new populations, changing goals, innovative techniques, and new methods of training. Current professional issues, outcome research, and assessment tools are also examined and evaluated. This biannual forum encourages dance/movement therapists and allied mental health professionals to test their theoretical premises and share their ideas. It is a valuable resource for administrators, psychiatrists, psychologists, social workers, and creative arts therapists in the disciplines of music, art, and drama.
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