Building person-centred homes: a case study of a cluster-designed home for adults with intellectual disability in Australia

Abstract

A case study of 20 families investigated a cluster design of new homes for 15 adults with intellectual disabilities in Australia. It explored how families created a cluster home model for adults to live in their own homes with paid support in a modern context by answering three research questions: What type of home did parents choose for their children with intellectual disabilities and why? What type of home did they achieve? How did they overcome challenges to accomplish building the home? Families adopted a participatory design approach, collaborating as learning partners to secure government funding for purchasing land and constructing their cluster design. However, it was a complex project requiring many stakeholders with conflicting interests and priorities. Specifically, families rejected the group home model preferred by government agency staff, shifted the focus from technical building rules and design standards to prioritise each adult’s needs and preferences for their home, rejected institution-like fixtures/fittings when installed and used family governance to choose key support workers directly. Ultimately, the families created security of place through tenancy in attractive homes with government funding, welcoming neighbours and chosen support workers.