Children with Intellectual Disabilities and Role of Public Sector Institutions: An Exploratory Study from District Lahore, Punjab, Pakistan

Khadija T. Khan, Muhammad Arshad, Afzaal Afzal
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Abstract

Intellectual disability is characterized by significant limitations both in intellectual functioning and in adaptive behavior, which are expressed in conceptual, social, and practical adaptive skills. The intellectual disability normally originates from the age of 18 years and restricted learning activity, including acute deficiency or restrictions in individual expertise in numerous fields such as cognitive, language, motor, psycho- social, and particular functioning of everyday living. People with intellectual disabilities have to face a lot of discrimination in Pakistan due to inadequate involvement of the public and private sectors. Keeping in consideration the importance and sensitive nature of the issue, the present exploratory study aims to understand the role of public sector institutions regarding children with intellectual disabilities in district Lahore. Primary data was collected through in-depth interviews with managers of different public sector institutions. The results presented through thematic analysis, and findings highlighted that several gaps existed in services, such as lack of proper mechanisms in the institutions, absence or pathetic check and balance, professional practitioners, training and guidelines, poor and inappropriate infrastructure, and limited participation in sports and extracurricular activities. The study strongly recommended that there should be a review and strict enforcement of policies, awareness among parents, and effective rehabilitation is necessary.
智障儿童和公共机构的作用:来自巴基斯坦旁遮普省拉合尔地区的探索性研究
智力残疾的特点是智力功能和适应性行为的显著限制,表现在概念、社会和实践适应技能上。智力残疾通常起源于18岁和学习活动受限,包括在许多领域的个人专业知识的严重缺乏或限制,如认知、语言、运动、社会心理和日常生活的特殊功能。在巴基斯坦,由于公共和私营部门的参与不足,智障人士不得不面临许多歧视。考虑到这一问题的重要性和敏感性,本探索性研究旨在了解公共部门机构在拉合尔地区智力残疾儿童方面的作用。主要数据是通过对不同公共部门机构的管理人员进行深度访谈收集的。通过专题分析提出的结果和调查结果强调了服务方面存在的一些差距,例如机构中缺乏适当的机制,缺乏或可怜的制衡,专业从业人员,培训和指导方针,基础设施差和不适当,体育和课外活动的参与有限。该研究强烈建议应审查和严格执行政策,提高家长的认识,并有必要进行有效的康复。
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