“What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”: exploring care relationships at the end of life in two life-sharing communities for people with a learning disability

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2023-11-01 DOI:10.1332/175795923x16749917135261

Paula Jacobs, Ethel Quayle, Heather Wilkinson

引用次数: 0

Abstract

Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explores the experiences of social care staff in two life-sharing communities where adults with a learning disability and staff live together. Four main themes were identified, highlighting different dimensions of care. These included an emphasis on relational care, responsive care and collaborative care, and an acknowledgement of barriers to care and caring that allowed people to live and die within the communities.

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“在过去的34年里，我和那些与我共同生活的人有什么关系?:在两个生活共享社区中为有学习障碍的人探索生命末期的护理关系

在学习障碍患者的生活中，老年仍然是一个研究不足的阶段。对服务机构来说，为临终病人提供支持可能是一项挑战，并涉及复杂的道德决策过程。本研究探讨在两个学习障碍成人与社工共同生活的生活分享社区，社工的经验。确定了四个主题，突出了护理的不同层面。其中包括强调关系护理、响应性护理和协作性护理，并承认护理和护理方面的障碍，这些障碍使人们能够在社区内生活和死亡。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.