Toward Removing Barriers in the Evaluation, Diagnosis, and Care of Individuals With Cerebral Visual Impairments

IF 3.4 Q1 EDUCATION & EDUCATIONAL RESEARCH
Amanda Lueck, Karen Harpster, Elizabeth Hartmann, Helen St Clair Tracy, Monika Jones, Richard Legge, Barry Kran, John Ravenscroft, Corinna M. Bauer
{"title":"Toward Removing Barriers in the Evaluation, Diagnosis, and Care of Individuals With Cerebral Visual Impairments","authors":"Amanda Lueck, Karen Harpster, Elizabeth Hartmann, Helen St Clair Tracy, Monika Jones, Richard Legge, Barry Kran, John Ravenscroft, Corinna M. Bauer","doi":"10.1177/23727322231195213","DOIUrl":null,"url":null,"abstract":"Cerebral visual impairment (CVI) is a leading cause of pediatric visual impairment worldwide. Despite the ramifications on multiple developmental domains and quality of life factors, substantial barriers remain for evaluation, diagnosis, treatment, and education of this growing population of children and adults. At the root is a lack of consensus on the definition and diagnostic criteria of CVI and a narrow ocular/acuity-based classification of visual impairment. This article covers four main issues that need to be urgently addressed to make strides toward removing current barriers. These challenges highlight the need for policy change at multiple levels to help ensure that individuals with CVI will have access to appropriate (re)habilitation and education services regardless of their acuity or visual function. Suggested solutions include the implementation of a globally accepted definition of CVI and increased multidisciplinary training programs. These will support international efforts to develop and implement quantitative interdisciplinary assessment methods, identify meaningful and effective intervention approaches, and monitor long-term outcomes for those with CVI. Additionally, sensitive and specific markers can be identified for differentiating CVI from other related developmental conditions, such as autism spectrum disorder and developmental coordination disorder. Ultimately, these proposed changes will lead toward improved quality of life for individuals with CVI and their caregivers.","PeriodicalId":52185,"journal":{"name":"Policy Insights from the Behavioral and Brain Sciences","volume":"43 1","pages":"0"},"PeriodicalIF":3.4000,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Policy Insights from the Behavioral and Brain Sciences","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/23727322231195213","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"EDUCATION & EDUCATIONAL RESEARCH","Score":null,"Total":0}
引用次数: 0

Abstract

Cerebral visual impairment (CVI) is a leading cause of pediatric visual impairment worldwide. Despite the ramifications on multiple developmental domains and quality of life factors, substantial barriers remain for evaluation, diagnosis, treatment, and education of this growing population of children and adults. At the root is a lack of consensus on the definition and diagnostic criteria of CVI and a narrow ocular/acuity-based classification of visual impairment. This article covers four main issues that need to be urgently addressed to make strides toward removing current barriers. These challenges highlight the need for policy change at multiple levels to help ensure that individuals with CVI will have access to appropriate (re)habilitation and education services regardless of their acuity or visual function. Suggested solutions include the implementation of a globally accepted definition of CVI and increased multidisciplinary training programs. These will support international efforts to develop and implement quantitative interdisciplinary assessment methods, identify meaningful and effective intervention approaches, and monitor long-term outcomes for those with CVI. Additionally, sensitive and specific markers can be identified for differentiating CVI from other related developmental conditions, such as autism spectrum disorder and developmental coordination disorder. Ultimately, these proposed changes will lead toward improved quality of life for individuals with CVI and their caregivers.
消除脑视觉障碍患者评估、诊断和护理中的障碍
脑性视力障碍(CVI)是全球儿童视力障碍的主要原因。尽管对多个发育领域和生活质量因素产生影响,但对这一不断增长的儿童和成人人口的评估、诊断、治疗和教育仍存在实质性障碍。其根本原因是对CVI的定义和诊断标准缺乏共识,以及对视力障碍的狭隘的眼/视敏度分类。本文涵盖了迫切需要解决的四个主要问题,以便在消除当前障碍方面取得进展。这些挑战突出了在多个层面上改变政策的必要性,以帮助确保患有CVI的个人能够获得适当的(再)康复和教育服务,而不管他们的敏锐度或视觉功能如何。建议的解决方案包括实施全球公认的CVI定义和增加多学科培训计划。这些项目将支持国际社会制定和实施定量的跨学科评估方法,确定有意义和有效的干预方法,并监测CVI患者的长期结果。此外,可以确定敏感和特异性的标记物来区分CVI与其他相关的发育疾病,如自闭症谱系障碍和发育协调障碍。最终,这些建议的改变将改善CVI患者及其护理人员的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Policy Insights from the Behavioral and Brain Sciences
Policy Insights from the Behavioral and Brain Sciences Social Sciences-Public Administration
CiteScore
5.30
自引率
0.00%
发文量
24
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信