What are the experiences of families facilitating the repatriation of their relatives with learning disabilities and/or autism back to Guernsey?

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

British Journal of Learning Disabilities Pub Date : 2023-09-11 DOI:10.1111/bld.12554

Rebecca Wallace, Julian Morris, Melanie Hodgkinson

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引用次数: 0

Abstract

Background

Recent Government guidelines have promoted returning people with learning disabilities and/or autism from out-of-area placements to their local communities. These transitions not only impact the individuals but also their families.

Methods

This study explores the experiences of family members who have been involved in the repatriation of people with learning disabilities and/or autism to their local community in Guernsey. Using semi-structured interviews, participants' experiences were analysed using Interpretative Phenomenological Analysis.

Findings

Three superordinate themes emerged: ‘distress, powerlessness and hopelessness’, ‘not feeling included’ and ‘parental role’.

Conclusions

The findings highlight the barriers and successes family members experience when supporting a relative with learning disabilities and/or autism to move back to Guernsey. Recommendations for healthcare services such as requirements for better communication and to include families in decision-making are discussed.

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协助将有学习障碍和/或自闭症的亲属遣返回格恩西岛的家庭有哪些经验？

背景政府最近的指导方针提倡将学习障碍者和/或自闭症患者从地区外的安置点送回当地社区。这些过渡不仅影响到个人，也影响到他们的家庭。方法本研究探讨了参与将学习障碍者和/或自闭症患者送回格恩西岛当地社区的家庭成员的经历。通过半结构式访谈，采用解释性现象分析法对参与者的经历进行了分析。结果出现了三个首要主题："苦恼、无力感和绝望"、"不被包容 "和 "父母的角色"。结论研究结果强调了家庭成员在支持有学习障碍和/或自闭症的亲属迁回格恩西岛时遇到的障碍和取得的成功。研究还讨论了对医疗保健服务的建议，如加强沟通和让家人参与决策的要求。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.