Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia

Q2 Nursing
Rita Hadi Widyastuti, Junaiti Sahar, Etty Rekawati, Aria Kekalih
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Abstract

Background: Understanding the barriers and support that family caregivers face when caring for older adults with dementia is critical for improving the quality of dementia care. However, research in this area remains limited in Indonesia. Purpose: This study aimed to explore the barriers and support for family caregivers in caring for older adults with dementia in Indonesia.Methods: A descriptive phenomenological study was conducted among 15 family caregivers who cared for older adults with dementia. Purposive sampling was used to recruit the participants. Inclusion criteria included primary family caregivers who provided care for four hours per day for at least six months, were proficient in Indonesian, assisted older adults in daily activities, and were capable of expressing their experiences. Data were collected using in-depth semi-structured interviews and analyzed using the Colaizzi method. Results: This study found that family caregivers faced barriers during the care of older adults with dementia, which have decreased the quality of care. These barriers included inadequate knowledge and skills of family caregivers regarding dementia, stigma, lack of knowledge and awareness in the community, limited availability of healthcare services, and healthcare professionals’ lack of knowledge about dementia. On the other hand, support received by family caregivers within the family, support from other family caregivers, and education provided by NGOs about caring for someone with dementia have shown a positive impact in reducing the burden on caregivers and improving the quality of care. Therefore, appropriate support is essential for family caregivers caring for older adults with dementia.Conclusion: This study showed that barriers originating from family caregivers, community awareness, access to health services, and barriers from health workers have impacted poor quality of care, while the support of families, fellow family caregivers, and NGOs have contributed to good quality of care. Further studies are needed to explore the perspectives of family caregivers representing different cultures in Indonesia.
家庭照顾者在照顾老年痴呆患者方面的障碍和支持:印度尼西亚的一项定性研究
背景:了解家庭照顾者在照顾老年痴呆症患者时面临的障碍和支持对于提高痴呆症护理质量至关重要。然而,在印度尼西亚,这方面的研究仍然有限。目的:本研究旨在探讨印度尼西亚家庭照顾者照顾老年痴呆患者的障碍和支持。方法:对15名照顾老年痴呆患者的家庭照护者进行描述性现象学研究。采用有目的的抽样方法招募参与者。纳入标准包括每天提供4小时护理至少6个月的主要家庭照顾者,精通印度尼西亚语,协助老年人进行日常活动,并能够表达他们的经历。采用深度半结构化访谈收集数据,并采用Colaizzi方法进行分析。结果:本研究发现,家庭照顾者在照顾老年痴呆症患者时面临障碍,这降低了护理质量。这些障碍包括家庭照顾者对痴呆症的知识和技能不足、耻辱、社区缺乏知识和意识、保健服务的可用性有限以及保健专业人员缺乏对痴呆症的知识。另一方面,家庭照护者在家庭内部获得的支持、其他家庭照护者的支持以及非政府组织提供的关于照护痴呆症患者的教育,在减轻照护者负担和提高照护质量方面显示出积极的影响。因此,对于照顾老年痴呆症患者的家庭护理人员来说,适当的支持是必不可少的。结论:本研究表明,来自家庭照顾者、社区意识、获得卫生服务的机会以及来自卫生工作者的障碍影响了较差的护理质量,而家庭、其他家庭照顾者和非政府组织的支持有助于提高护理质量。需要进一步的研究来探索代表印度尼西亚不同文化的家庭照顾者的观点。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Nurse Media Journal of Nursing
Nurse Media Journal of Nursing Earth and Planetary Sciences-Earth and Planetary Sciences (all)
CiteScore
1.50
自引率
0.00%
发文量
27
审稿时长
16 weeks
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