To do or not to do: practical and ethical concerns in online research with children and young people during crises

Matluba Khan, Justin Spinney, Muntazar Monsur
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Abstract

ABSTRACTThis article contributes to an ongoing discussion regarding the ethics of online research involving children and young people (CYP) during crises. The paper critically reflects on our experience of designing, approving and conducting a multi-country study utilising an online diary to investigate how social, physical and virtual conditions shape and are shaped by CYP’s everyday experiences during the COVID-19 pandemic. Our reflections identify four key ethical and practical areas of concern induced by the physical immobility of researchers and the need to research at a distance: (1) the ethics of doing and not doing research in times of crisis and rupture; (2) the digital divide and accessibility of tools; (3) ethical issues induced by institutional safeguarding procedure (e.g. issues of trust and rapport) and how these intersect with digital technologies and online platforms; and (4) the ethical issues that arise from breaching the ‘social contract’ to give voice to those CYPs who have provided data. We conclude that ethical restrictions and academic standards intended to minimise the harm of using online tools during a crisis can instead have the effect of silencing children and young people’s voices. Accordingly, greater consideration and deliberation between researchers and ethics committees are required to find more reflexive ways to conduct research with CYP during crises.KEYWORDS: Online researchpandemicchildrenyoung peopleethicsdigital technology Disclosure statementNo potential conflict of interest was reported by the authors.Notes1 We acknowledge that different departmental or institutional ethics boards have had different approaches to approving new application for research with children during the pandemic considering the pertinent ethical issues. Some universities did not approve any social science or geography research with children and young people during the pandemic that were deemed ‘not essential’ during the crisis.
做或不做:危机期间儿童和青少年在线研究中的实际和伦理问题
摘要本文对危机期间涉及儿童和青少年(CYP)的在线研究的伦理问题进行了讨论。本文批判性地反思了我们设计、批准和开展一项多国研究的经验,该研究利用在线日记来调查2019冠状病毒病大流行期间CYP的日常经历如何塑造和塑造社会、物理和虚拟条件。我们的反思确定了由研究人员的身体不能动和远距离研究的需要引起的四个关键伦理和实践领域的关注:(1)在危机和破裂时期做和不做研究的伦理;(2)数字鸿沟和工具可及性;(3)制度保障程序引发的伦理问题(如信任和融洽问题),以及这些问题如何与数字技术和在线平台交叉;以及(4)违反“社会契约”,让提供资料的CYPs发表意见,所引致的伦理问题。我们得出的结论是,旨在将危机期间使用在线工具的危害降至最低的道德限制和学术标准,反而会使儿童和年轻人噤声。因此,研究人员和伦理委员会之间需要进行更多的考虑和审议,以找到在危机期间使用CYP进行研究的更具反思性的方法。关键词:网络研究流行病儿童青少年伦理数字技术披露声明作者未报告潜在利益冲突。注1我们承认,考虑到相关的伦理问题,不同部门或机构的伦理委员会在批准大流行期间与儿童进行研究的新申请时采取了不同的方法。一些大学在大流行期间没有批准任何与儿童和年轻人有关的社会科学或地理研究,这些研究在危机期间被认为是“不必要的”。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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