Tourette syndrome. The importance of the prevailing attitude and the social problems of the sufferers: literature review

B. Puzonaitë, A. Vaitkus
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 Aim of the study. To discuss about the clinical characteristics of TS and the importance of correct interpretation; to identify social problems prevalent in children with TS and how these problems can be prevented.
 Method of the study. The review of scientific literature included publications that were accessible via the Medline database. Inclusion criteria: articles not older than five years, published in English, full text freely available. Exclusion criteria: duplicate articles, publications, information about which did not correspond to the chosen analysed topic. Key words used: Tourette, social problem. Six articles were included in the systematic literature review.
 Results. Six social problems are identified that have a significant impact on the lives of people with TS: difficulties in communicating and building new relationships, social exclusion, lack of self-worth and self-esteem, poorer academic results, risk of criminality or suicide, and manifestation of the treatment-resistant form of TS. Wider public education, reduction of stigmatization, individual assessment of patient problems and concomitant conditions, and application of targeted treatment methods are extremely important for the management of these problems.
 Conclusions. Stigmatization and lack of knowledge about TS are common not only among the general public but also among medical professionals. It is important to highlight the need for education about TS for both. Correct interpretation of the disease and early diagnosis can be the first major step to prevent the development of social problems.","PeriodicalId":479531,"journal":{"name":"Neurologijos seminarai","volume":"37 3","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Neurologijos seminarai","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.29014/ns.2023.27.1","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
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Abstract

Background. Tourette syndrome (TS) is not often encountered in the practice of doctors. Biased opinions of the public and doctors prevail about TS, its symptoms are often misunderstood or not recognized in time. This can lead to the development of social problems and stigmatization of the sufferers. Therefore, it is extremely important to rely on scientific research data in order to get a correct understanding of the TS itself and the possible consequences of its misinterpretation for the further social life of children. Aim of the study. To discuss about the clinical characteristics of TS and the importance of correct interpretation; to identify social problems prevalent in children with TS and how these problems can be prevented. Method of the study. The review of scientific literature included publications that were accessible via the Medline database. Inclusion criteria: articles not older than five years, published in English, full text freely available. Exclusion criteria: duplicate articles, publications, information about which did not correspond to the chosen analysed topic. Key words used: Tourette, social problem. Six articles were included in the systematic literature review. Results. Six social problems are identified that have a significant impact on the lives of people with TS: difficulties in communicating and building new relationships, social exclusion, lack of self-worth and self-esteem, poorer academic results, risk of criminality or suicide, and manifestation of the treatment-resistant form of TS. Wider public education, reduction of stigmatization, individual assessment of patient problems and concomitant conditions, and application of targeted treatment methods are extremely important for the management of these problems. Conclusions. Stigmatization and lack of knowledge about TS are common not only among the general public but also among medical professionals. It is important to highlight the need for education about TS for both. Correct interpretation of the disease and early diagnosis can be the first major step to prevent the development of social problems.
图雷特综合症。流行的态度和患者的社会问题的重要性:文献综述
背景。抽动秽语综合征(TS)在医生的实践中并不常见。公众和医生对TS的偏见普遍存在,其症状往往被误解或未被及时识别。这可能导致社会问题的发展和患者的污名化。因此,依靠科学研究数据来正确认识TS本身以及其误读对儿童未来社会生活可能造成的后果是极其重要的。 研究的目的。探讨TS的临床特点及正确解读的重要性;找出在TS儿童中普遍存在的社会问题,以及如何预防这些问题。研究方法。对科学文献的审查包括可通过Medline数据库访问的出版物。入选标准:文章发表时间不超过5年,以英文发表,全文免费提供。排除标准:重复的文章、出版物以及与所选分析主题不相符的信息。关键词:抽动秽语;社会问题;6篇文章被纳入系统文献综述。 结果。确定了对TS患者的生活产生重大影响的六个社会问题:沟通和建立新关系困难,社会排斥,缺乏自我价值和自尊,学习成绩较差,犯罪或自杀风险,以及表现出治疗抵抗形式的TS。更广泛的公众教育,减少污名化,对患者问题和伴随条件的个人评估,以及有针对性的治疗方法的应用对这些问题的管理非常重要。 结论。污名化和缺乏对TS的了解不仅在普通大众中很常见,而且在医疗专业人员中也很常见。重要的是要强调对两者进行TS教育的必要性。对疾病的正确解读和早期诊断可以是防止社会问题发展的第一大步骤。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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