Le point de vue des familles. Table ronde réalisée par Loubna Chérif Kanouni Mekouar, Emmanuelle Petronzio et Xiao Hui Loo, animée par Jean-Claude Riou dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris

Abstract

How do parents of children with PIMD understand and experience their child's orthopaedic issues ? How do they perceive and approach the various treatments proposed during their child's growth? Surgical indications are almost systematically part of the journey for children and adolescents with polyhandicap. How do parents receive these proposals and how do they navigate with professionals, their child, and their siblings during these significant periods? These are the questions that we discussed with three parents during this roundtable discussion.