The program of multidisciplinary online support of children with spina bifida in Ukraine during the war

CHILD`S HEALTH Pub Date : 2023-09-17 DOI:10.22141/2224-0551.18.5.2023.1615

O.R. Boyarchuk, M.V. Koshmaniuk

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Abstract

Background. The Russian aggression against Ukraine has exacerbated the challenges faced by children with spina bifida (SB). Access to healthcare is severely impacted due to security concerns, restricted mobility, and mass displacement. To address these issues and improve access to medical care, we launched a project titled “The program of multidisciplinary online support of children with spina bifida in Ukraine”. The aim: to present the program of multidisciplinary online support of patients with SB and their families during the war for improving healthcare for this vulnerable group of patients at a time of limited opportunities. Methods. The project ran from June to December 2022 and involved collaboration of the NGO “Lights of Spirit”, doctors, and specialists including a lawyer, a psychologist, a social worker, a teacher. This multidisciplinary team worked together to provide comprehensive assistance to families with children having SB. Results. Overall, 149 families with children with SB and hydrocephalus from nearly all regions of Ukraine participated in the project. Initially, 82 online consultations were conducted. Nineteen online meetings were organized for parents with the involvement of a physical therapist, an occupational therapist, and a psychologist and 87 families took part in these meetings. Parents and children with SB received online consultations from doctors of the multidisciplinary team, as well as examination, treatment, necessary care products, and medicine tailored to their individual needs. The project also provided educational, informational, and psychological support. Conclusions. The program of multidisciplinary online support of children with SB in Ukraine during the Russian invasion confirmed its significance, necessity, and effectiveness. It facilitated the formation of partnerships between patients, parents, and clinicians. The project showed the problems of prevention and care of children with SB and also prospects for future development in this field.

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战争期间乌克兰脊柱裂儿童多学科在线支持项目

背景。俄罗斯对乌克兰的侵略加剧了脊柱裂儿童面临的挑战。由于安全问题、行动受限和大规模流离失所，获得医疗保健的机会受到严重影响。为了解决这些问题并改善获得医疗服务的机会，我们启动了一个名为“乌克兰脊柱裂儿童多学科在线支持方案”的项目。目的:在战争期间为SB患者及其家属提供多学科在线支持方案，以便在机会有限的情况下改善对这一弱势患者群体的医疗保健。方法。该项目从2022年6月持续到12月，涉及非政府组织“精神之光”、医生和专家的合作，包括律师、心理学家、社会工作者和教师。这个多学科团队共同努力，为有SB孩子的家庭提供全面的帮助。总体而言，来自乌克兰几乎所有地区的149个患有SB和脑积水儿童的家庭参加了该项目。最初，进行了82次在线咨询。在一名物理治疗师、一名职业治疗师和一名心理学家的参与下，为父母组织了19次在线会议，87个家庭参加了这些会议。患有SB的家长和儿童接受了多学科团队医生的在线咨询，以及为他们量身定制的检查、治疗、必要的护理产品和药物。该项目还提供教育、信息和心理支持。结论。在俄罗斯入侵乌克兰期间，对患有SB的儿童进行多学科在线支持的项目证实了其重要性、必要性和有效性。它促进了患者、家长和临床医生之间伙伴关系的形成。该项目显示了SB儿童的预防和护理存在的问题，并对该领域的未来发展进行了展望。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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CHILD`S HEALTH

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