Exploring Child-Patient Autonomy: Findings from an Ethnographic Study of Clinic Visits by Children

IF 2 3区社会学 Q1 SOCIAL SCIENCES, INTERDISCIPLINARY

Child Indicators Research Pub Date : 2023-10-07 DOI:10.1007/s12187-023-10077-3

Kristi Paron

引用次数: 0

Abstract

Abstract In research into the involvement of children in decision-making about their health and treatment there is an over-reliance on interviews (with children, parents and doctors) as a research method. What actually happens during clinic visits in terms of child-adult communication and how children participate in decision-making has been largely overlooked. This study aims to fill this gap by exploring how child-patient autonomy functions in a child-parent-doctor triadic relationship. The study is based on ethnographic non-participatory observations of appointments with doctors involving 31 children and young adults ranging in age from 2 to 19 years. The study demonstrates that patient autonomy is not clearly attributed to either the child or the parent by the doctor, but is shared between them, and therefore child-patient autonomy is a relational process that is conceptualised as autonomy-making in this article.

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探索儿童-病人自主权:一项儿童诊所访问的民族志研究结果

在对儿童参与健康和治疗决策的研究中，过度依赖(与儿童、父母和医生)访谈作为一种研究方法。在诊所访问期间，儿童与成人之间的沟通以及儿童如何参与决策的实际情况在很大程度上被忽视了。本研究旨在填补这一空白，探索如何儿童-病人自主功能在儿童-父母-医生三位一体的关系。这项研究基于对31名年龄在2岁到19岁之间的儿童和年轻人与医生预约的非参与性观察。该研究表明，医生没有明确地将患者自主权归于儿童或父母，而是在他们之间共享，因此儿童-患者自主权是一个关系过程，在本文中被概念化为自主制定。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Child Indicators Research SOCIAL SCIENCES, INTERDISCIPLINARY-

CiteScore

4.90

自引率

14.30%

发文量

103

期刊介绍： Child Indicators Research is an international, peer-reviewed quarterly that focuses on measurements and indicators of children''s well-being, and their usage within multiple domains and in diverse cultures. The Journal will present measures and data resources, analysis of the data, exploration of theoretical issues, and information about the status of children, as well as the implementation of this information in policy and practice. It explores how child indicators can be used to improve the development and well-being of children. Child Indicators Research will provide a unique, applied perspective, by presenting a variety of analytical models, different perspectives, and a range of social policy regimes. The Journal will break through the current ‘isolation’ of academicians, researchers and practitioners and serve as a ‘natural habitat’ for anyone interested in child indicators. Unique and exclusive, the Journal will be a source of high quality, policy impact and rigorous scientific papers. Readership: academicians, researchers, government officials, data collectors, providers of funding, practitioners, and journalists who have an interest in children’s well-being issues.