The Qualitative DIGNISPACE Study: The Co-Design of a Life Review, Meaning-Making and Legacy Leaving Digital Intervention for Young People with Life-Limiting Conditions

Q2 Social Sciences

Illness Crisis and Loss Pub Date : 2023-10-08 DOI:10.1177/10541373231202842

Alison M. Rodriguez, Allan Kellehear, Vitaveska Lanfranchi, Wilfred McSherry, Michael Tatterton, Lucy Watts MBE, Nahel Yaziji, Joanna Smith

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引用次数: 0

Abstract

Background: Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited. Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE). Design: A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis. Results: Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions. Conclusions: DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.

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定性DIGNISPACE研究:生命回顾、意义创造和遗产留下数字干预对生命受限年轻人的共同设计

背景:有生命限制条件的年轻人有未满足的心理-精神需求。尊严治疗是一种心理治疗临终干预，解决生活回顾，意义创造和遗产留下。包括年轻人在内的尊严治疗研究是有限的。目的:共同设计一种基于数字尊严治疗的干预措施，用于患有生命限制疾病的年轻人(DIGNISPACE)。设计:一项定性研究，包括焦点小组(n=5)与基于临终关怀的医疗保健专业人员(n=23)，半结构化访谈与生命受限的年轻人(n=13)和家庭照顾者(n=12)。数据采用框架分析法进行分析。结果:得出三个主要主题;干预目的，尊严治疗问题协议修正案和数字应用程序的内容。研究结果影响了DIGNISPACE的发展，并影响了有生命限制条件的年轻人的尊严模式。结论:DIGNISPACE解决了生命受限青少年的心理-精神需求，包括其内容和实施方式中对生命受限青少年尊严模式的原则。

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来源期刊

Illness Crisis and Loss Social Sciences-Sociology and Political Science

CiteScore

1.80

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0.00%

发文量

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