Quality of life in Children with Cerebral Palsy

Q4 Medicine
Sidra Hanif, Arooj Zameer, Hamra Waheed, Faryal Zaidi, Ishaq Ahmed, Maham Choudary
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Abstract

Cerebral palsy refers to a non-progressive brain disorder that affects the development of brain in developing infant and reduces the quality of life. Quality of life (QOL) is assessed using the CPQOL tool. Objectives: To assess the quality of life of children with CP. Methods: A cross-sectional study was conducted at the National Institute of Rehabilitation Medicine, Islamabad during Oct-2022 to Mar-2023. The sample was raised using slovin’s formula and non-probability convenient sampling technique was used. Data were collected using standard CP-QOL tool. All types of CP diagnosed cases both gender, presence of a caregiver and an age range of 4 to 12 years were included. Patients with non-availability of a caregiver and presence of any other illness not associated with CP were excluded. Results: Out of 129 participants, 105 were included on the basis of inclusion and exclusion criteria. The mean ± SD of patients overall score came out to be 46.83 ±9.75. CPQOL score of males were 47.36±9.96 and of female was 46.19±9.56. CPQOL score of age 4-6years was 45.12±10.58, 7-9 years was 47.70±9.15 and 10-12 years was 49.21±8.54 while overall CPQOL score of children with diplegic CP was 48.38±9.11, hemiplegic CP was 48.66±7.74, quadriplegic CP was 37.92±11.16. Conclusions: study showed that among both genders, females had poor QoL than males. This study also concluded that quadriplegic children had poor QoL than any other types of cerebral palsy. The overall status of QoL of children having Cerebral Palsy was low.
脑性麻痹儿童的生活质量
脑瘫是指影响发育中的婴儿大脑发育,降低生活质量的一种非进行性脑部疾病。使用CPQOL工具评估生活质量(QOL)。目的:评估CP患儿的生活质量。方法:横断面研究于2022年10月至2023年3月在伊斯兰堡国家康复医学研究所进行。采用slovin公式提出样本,并采用非概率方便抽样技术。采用标准CP-QOL工具收集数据。所有类型的CP诊断病例,包括性别,是否有护理者,年龄范围为4至12岁。没有护理人员和存在任何其他与CP无关的疾病的患者被排除在外。结果:在129名受试者中,105人根据纳入和排除标准被纳入。患者总得分的平均值±SD为46.83±9.75。男性CPQOL评分为47.36±9.96,女性为46.19±9.56。4 ~ 6岁CPQOL评分为45.12±10.58,7 ~ 9岁CPQOL评分为47.70±9.15,10 ~ 12岁CPQOL评分为49.21±8.54,而双瘫CP总分为48.38±9.11,偏瘫CP总分为48.66±7.74,四肢瘫CP总分为37.92±11.16。结论:研究表明,无论男女,女性的生活质量都比男性差。这项研究还得出结论,四肢瘫痪儿童的生活质量比任何其他类型的脑瘫儿童都差。脑瘫患儿总体生活质量较低。
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来源期刊
Pakistan Journal of Medical & Health Sciences
Pakistan Journal of Medical & Health Sciences MEDICINE, GENERAL & INTERNAL-
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期刊介绍: Pakistan Journal of Medical and Health Sciences is an international biomedical journal from Pakistan. We publish materials of interest to the practitioners and scientists in the broad field of medicine. Articles describing original qualitative, quantitative, human/animal clinical or laboratory studies are considered for publication.
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