Factors Affecting the Family Burden of the Palliative Family

Candra Hadi Prasetiya, Emilia Puspitasari Sugiyanto, Wijanarko Heru Pramono
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Abstract

The process of palliative patient care indirectly causes a burden on the family. This study aims to determine the description of the family burden in caring for palliative patients. This study is a qualitative research with a phenomenological study design. Participant criteria are families who care for patients for at least 6 months. The number of respondents in this study were 4 respondents as care givers of palliative patients. The research method using the analysis method used includes categorizing themes, compiling sub-categorization of themes and the last is the coding process. The results of the study showed that there was a description of the family burden of palliative patients and a description of the factors that influenced palliative patients including economic status, patient complaints, family support, family perception, availability of treatment support tools, and the ability of families to manage family burdens. The burden on the family can be reduced by training the family to manage the existing factors.
影响姑息治疗家庭负担的因素
姑息治疗病人的过程间接地给家庭造成负担。本研究旨在确定姑息治疗病人的家庭负担描述。本研究采用现象学研究设计的定性研究。参与者的标准是照顾患者至少6个月的家庭。本研究的调查对象为4名姑息病人的照护者。采用分析方法的研究方法包括对主题进行分类,编写主题的子分类,最后是编码过程。研究结果表明,对姑息治疗患者的家庭负担进行了描述,并对影响姑息治疗患者的因素进行了描述,包括经济状况、患者投诉、家庭支持、家庭感知、治疗支持工具的可获得性以及家庭管理家庭负担的能力。通过培训家庭管理现有因素,可以减轻家庭的负担。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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