[A survey of the social and psychological effects of psoriasis].

H Yasuda, H Kobayashi, A Ohkawara
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Abstract

338 patients with psoriasis (male: 213, female: 125) who have been treated in our department from 1979 to 1988 answered a questionnaire concerning social and psychological effects of the disease. The mean age of onset was 33 years; 35 years for the male and 29 years for the female. Social and emotional morbidity was present for many patients despite the access to modern treatments. The worst feeling about having psoriasis was general appearance of the skin (41.7%), itching (19.5%), flaking of the skin (16.9%) and time-consuming or messy treatment programs (13.3%). A large percentage of patients avoided common social activities, for example, communal baths, swimming, and sports. Triggering factors of psoriasis were climate (60.3%), stress (46.9%), sleeping disturbance (34.6%), irregular life (32.2%), and low humidity (22.5%). 18.6% of patients were affected in choosing the occupation by having psoriasis. Many patients felt stigmatized as the disease is contagious or genetic. Most of the patients learned psoriasis through doctors, however, 75.7% of them wanted to get more informations. Finally, since only 26.3% of patients were satisfied with current therapeutics, dermatologists seem to be too self satisfied with present managements. It is important for us to understand what the patients are really suffering from and what the patients really want. And, it also is important to make efforts for a better understanding of psoriasis in society.

牛皮癣的社会和心理影响调查
1979年至1988年在我科治疗的338例牛皮癣患者(男213例,女125例)回答了一份有关该病的社会和心理影响的问卷。平均发病年龄33岁;男性35岁,女性29岁。尽管获得了现代治疗,但许多患者仍存在社会和情感上的病态。对牛皮癣最糟糕的感觉是皮肤外观一般(41.7%),瘙痒(19.5%),皮肤脱落(16.9%)和耗时或杂乱的治疗方案(13.3%)。很大比例的患者避免常见的社交活动,例如公共浴室、游泳和运动。诱发银屑病的因素为气候(60.3%)、应激(46.9%)、睡眠障碍(34.6%)、生活不规律(32.2%)、低湿度(22.5%)。18.6%的患者因患牛皮癣而影响职业选择。许多患者感到耻辱,因为这种疾病是传染性的或遗传性的。大多数患者通过医生了解牛皮癣,但75.7%的患者希望获得更多的信息。最后,由于只有26.3%的患者对目前的治疗方法感到满意,皮肤科医生似乎对目前的治疗方法过于自满。对我们来说,了解病人真正的痛苦和他们真正的需求是很重要的。同时,为更好地了解牛皮癣在社会上也很重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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