International Nursing Actions to Reduce Health Inequities Faced by People with Intellectual and Developmental Disability

K. Fisher, M. Desroches, D. Marsden, Stacey Rees, R. Northway, P. Horan, Judith Stych, S. Ailey, Henrietta Trip, N. Wilson
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Abstract

The impact of the COVID-19 pandemic highlighted health inequities for people with intellectual and developmental disability (PWIDD). It was also the stimulus for an international group of nurse researchers with shared expertise and experience to create a Global IDD Nursing Collaboratory. A collaboratory is a networked environment or “center without walls” where interaction oriented to common research areas occur without regard to physical location. The overarching goal of this Global Nursing Collaboratory is to assure the highest quality of life for PWIDD across the lifespan. Applying their unique skills and expertise, nurses working across health and social contexts are often the bridge over the healthcare gaps encountered by PWIDD. This paper describes the potential practice, education, and research contributions nurses can make to reduce health inequities experienced by PWIDD. We will examine how we talk about disability, the impact of the current COVID 19 crisis, and our educational systems which in some countries leave nurses and other health professionals ill prepared to meet the unique needs of this population We will describe the context, access issues, and health service organizations for and with PWIDD across countries to equip nurses with basic knowledge of health care for PWIDD and energize meaningful improvement in delivery of this care. Importantly, we offer action steps for all nurses toward reducing stigma and health inequities related to living with an intellectual and developmental disability (IDD).
减少智力和发育残疾者面临的卫生不公平现象的国际护理行动
2019冠状病毒病大流行的影响凸显了智力和发育残疾者(PWIDD)面临的卫生不平等现象。它还促使一个国际护理研究小组分享专业知识和经验,以创建一个全球IDD护理合作实验室。合作实验室是一个网络环境或“没有围墙的中心”,在这里,面向共同研究领域的交互发生,而不考虑物理位置。这个全球护理合作实验室的首要目标是确保PWIDD患者在整个生命周期中的最高生活质量。护士运用其独特的技能和专业知识,在卫生和社会环境中工作,往往是弥合PWIDD遇到的卫生保健差距的桥梁。本文描述了潜在的实践,教育和研究贡献护士可以做出减少健康不平等经历的PWIDD。我们将研究我们如何谈论残疾、当前COVID - 19危机的影响,以及我们的教育体系——在一些国家,我们的教育体系使护士和其他卫生专业人员准备不足,无法满足这一人群的独特需求。我们将描述各国PWIDD的背景、获取问题和卫生服务组织,以使护士掌握PWIDD的基本卫生保健知识,并为提供这种护理提供有意义的改进。重要的是,我们为所有护士提供了行动步骤,以减少与智力和发育障碍(IDD)相关的耻辱和健康不平等。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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