Quality of Life and Burden in caregivers of Multiple Sclerosis patients

J. Opara, W. Brola
{"title":"Quality of Life and Burden in caregivers of Multiple Sclerosis patients","authors":"J. Opara, W. Brola","doi":"10.1515/pha-2017-0002","DOIUrl":null,"url":null,"abstract":"Abstract Multiple sclerosis (MS) is one of the most disabling disorders of the central nervous system. Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. This places women in the position of being care recipients rather than caregivers. Some results also supported hypothesis that female caregivers reported a higher need for emotional support than male caregivers. As with female caregivers, decreased emotional support predicted poorer QoL among male caregivers. Caring for a MS patient may negatively impact several objective and subjective aspects of caregiver's life, such as physical and emotional health, morale, work life, finances, social mobility, interpersonal relationships and sexual life. In studies assessing the psychological consequences of care a higher level of anxiety and depression in caregivers than in the general population has been reported. Caregivers who experience burden are more likely to have a higher risk of depression and a lower quality of life. Early recognition of caregiver burden is important in determining appropriate interventions. In this review report the current state of knowledge about the QoL of MS caregivers as well the burden of MS caregivers has been described.","PeriodicalId":151082,"journal":{"name":"Physiotherapy and Health Activity","volume":"269 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2018-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"17","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Physiotherapy and Health Activity","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1515/pha-2017-0002","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 17

Abstract

Abstract Multiple sclerosis (MS) is one of the most disabling disorders of the central nervous system. Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. This places women in the position of being care recipients rather than caregivers. Some results also supported hypothesis that female caregivers reported a higher need for emotional support than male caregivers. As with female caregivers, decreased emotional support predicted poorer QoL among male caregivers. Caring for a MS patient may negatively impact several objective and subjective aspects of caregiver's life, such as physical and emotional health, morale, work life, finances, social mobility, interpersonal relationships and sexual life. In studies assessing the psychological consequences of care a higher level of anxiety and depression in caregivers than in the general population has been reported. Caregivers who experience burden are more likely to have a higher risk of depression and a lower quality of life. Early recognition of caregiver burden is important in determining appropriate interventions. In this review report the current state of knowledge about the QoL of MS caregivers as well the burden of MS caregivers has been described.
多发性硬化症患者照护者的生活质量与负担
多发性硬化症(MS)是中枢神经系统致残性疾病之一。由于发病年龄和疾病的进行性,MS患者的照顾者可能会经历独特的照顾者压力。此外,由于多发性硬化症在女性中更为普遍,男性往往成为配偶的照顾者。这使妇女处于被照顾者而不是照顾者的地位。一些结果也支持了女性照顾者比男性照顾者更需要情感支持的假设。与女性照顾者一样,情感支持的减少预示着男性照顾者的生活质量较差。照顾多发性硬化症患者可能会对护理者生活的几个客观和主观方面产生负面影响,如身体和情感健康、士气、工作生活、财务状况、社会流动性、人际关系和性生活。据报道,在评估护理心理后果的研究中,护理人员的焦虑和抑郁水平高于一般人群。有负担的照顾者患抑郁症的风险更高,生活质量也更低。早期识别照顾者负担对于确定适当的干预措施很重要。在这篇综述报告中,对MS护理人员生活质量的现状以及MS护理人员的负担进行了描述。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信