Property and Personality Rights with Regard to Biobanks: A Layered System with Germany as an Example

Jürgen Robienski, J. Simon
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引用次数: 1

Abstract

In the field of genetic research and the subsequent rise of biobanks an intensive discussion is taking place on national and international levels about property and personality rights to one's own body and body parts. The authors attempt to develop on the basis of the current controversially discussed law a concept of property, which can solve the legal and bioethical problems of the multiple use of human samples. Therefore, the question will be discussed whether a person is eligible to claim property rights to the tissue, which was separated from him. The authors' opinion is that this person only looses his property rights when all data are completely anonymised. Also the trustee model could be an efficient model, in which the tissue is safeguarded and pseudonymised by a trustee, to preserve the interests of the former owner of the human samples, but concurrently support the interests of the users.
生物银行的产权与人格权:以德国为例的分层制度
在基因研究领域和随后兴起的生物银行中,正在国家和国际层面上就个人身体和身体部位的财产权和人格权进行激烈的讨论。作者试图在目前争论不休的法律基础上,发展一种财产概念,以解决人体样本多重使用的法律和生物伦理问题。因此,一个人是否有资格对从他身上分离出来的组织主张财产权的问题将被讨论。作者的观点是,只有当所有数据完全匿名时,这个人才会失去他的财产权。此外,受托人模型可能是一种有效的模型,其中组织由受托人保护和匿名,以维护人类样本前所有者的利益,但同时支持用户的利益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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