THE LANDSCAPE OF ONE BREAST: EMPOWERING BREAST CANCER SURVIVORS THROUGH DEVELOPING A TRANSDISCIPLINARY INTERVENTION FRAMEWORK IN A JIANGMEN BREAST CANCER HOSPITAL IN CHINA

Yuk Yee Karen Lee, Kin Li
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Abstract

"Breast cancer is a major concern in women’s health in Mainland China. Literatures demonstrates that women with breast cancer (WBC) need to pay much effort into resisting stigma and the impact of treatment side-effects; they suffer from overwhelming consequences due to bodily disfigurement and all these experiences will be unbeneficial for their mental and sexual health. However, related studies in this area are rare in China. The objectives of this study are 1) To understand WBC’s treatment experiences, 2) To understand what kinds of support should be contained in a transdisciplinary intervention framework (TIP) for Chinese WBC through the lens that is sensitive to gender, societal, cultural and practical experience. In this study, the feminist participatory action research (FPAR) approach containing the four cyclical processes of action research was adopted. WBC’s stories were collected through oral history, group materials such as drawings, theme songs, poetry, handicraft, storytelling, and public speech content; research team members and peer counselors were involved in the development of the model. This study revealed that WBC faces difficulties returning to the job market and discrimination, oppression and gender stereotypes are commonly found in the whole treatment process. WBC suffered from structural stigma, public stigma, and self-stigma. The research findings revealed that forming a critical timeline for intervention is essential, including stage 1: Stage of suspected breast cancer (SS), stage 2: Stage of diagnosis (SD), stage 3: Stage of treatment and prognosis (ST), and stage 4: Stage of rehabilitation and integration (SRI). Risk factors for coping with breast cancer are treatment side effects, changes to body image, fear of being stigmatized both in social networks and the job market, and lack of personal care during hospitalization. Protective factors for coping with breast cancer are the support of health professionals, spouses, and peers with the same experience, enhancing coping strategies, and reduction of symptom distress; all these are crucial to enhance resistance when fighting breast cancer. Benefit finding is crucial for WBC to rebuild their self-respect and identity. Collaboration is essential between 1) Health and medical care, 2) Medical social work, 3) Peer counselor network, and 4) self-help organization to form the TIF for quality care. The research findings are crucial for China Health Bureau to develop medical social services through a lens that is sensitive to gender, societal, cultural, and practical experiences of breast cancer survivors and their families."
一个乳房的景观:通过建立一个跨学科的干预框架在中国江门乳腺癌医院增强乳腺癌幸存者的能力
“乳腺癌是中国大陆女性健康的一个主要问题。文献表明,女性乳腺癌(WBC)需要付出很大的努力,以抵制耻辱和治疗副作用的影响;由于身体毁容,他们承受着巨大的后果,所有这些经历对他们的精神和性健康都是不利的。然而,国内对该领域的相关研究较少。本研究的目的是:1)了解白细胞的治疗经验;2)通过对性别、社会、文化和实践经验敏感的视角,了解中国白细胞的跨学科干预框架(TIP)应包含哪些支持。本研究采用女性主义参与式行动研究(FPAR)方法,包含行动研究的四个循环过程。WBC的故事通过口述历史、绘画、主题歌、诗歌、手工艺、讲故事、公开演讲内容等群体资料收集;研究小组成员和同伴辅导员参与了模型的开发。本研究发现,女白细胞在重返就业市场方面存在困难,在整个治疗过程中普遍存在歧视、压迫和性别刻板印象。白细胞存在结构性耻辱感、公众耻辱感和自我耻辱感。研究结果表明,形成干预的关键时间线至关重要,包括1期:疑似乳腺癌期(SS), 2期:诊断期(SD), 3期:治疗与预后期(ST), 4期:康复与融合期(SRI)。应对乳腺癌的风险因素是治疗副作用、身体形象的改变、害怕在社交网络和就业市场上被污名化,以及住院期间缺乏个人护理。应对乳腺癌的保护因素是保健专业人员、配偶和具有相同经历的同伴的支持,加强应对策略,减少症状困扰;所有这些都对增强抵抗乳腺癌的能力至关重要。寻找利益对于WBC重建自尊和身份至关重要。1)健康和医疗护理,2)医疗社会工作,3)同伴咨询网络和4)自助组织之间的协作是必不可少的,以形成优质护理的TIF。研究结果对于中国卫生局通过对性别、社会、文化和乳腺癌幸存者及其家人的实际经验敏感的视角来发展医疗社会服务至关重要。”
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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