Acceptability of an interstage home monitoring mobile application for caregivers of children with single ventricle physiology: Toward technology-integrated family management

IF 1.2 4区医学 Q3 NURSING

Journal for Specialists in Pediatric Nursing Pub Date : 2022-04-01 DOI:10.1111/jspn.12372

Lisa Blair PhD, RN, Jeffrey Vergales MD, Leslie Peregoy MSN, PNP-BC, Hallie Seegal MSN, RN, Jessica Keim-Malpass PhD, RN

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引用次数: 2

Abstract

Purpose

Infants with single ventricle physiology experience numerous vulnerable transitions, and the interstage period for shunt-dependent children represents the time of highest risk for morbidity and mortality. Data exchange, physiological monitoring, and communication between clinicians and caregivers through interstage home monitoring are critical. The purpose of this study is to report on the acceptability of a technology-enhanced home monitoring mobile application for interstage family management of children with single ventricle physiology.

Design and Methods

This study employed a qualitative descriptive study design and recruited caregivers that were part of a broader quality improvement project where they were beta users of a mobile health application specifically developed for the interstage home monitoring time period.

Results

Eleven caregivers were enrolled in this study that was a part of the early phases of beta testing the mobile application from a human-centered design perspective. In general, the participants had a favorable sentiment toward the technology-integrated family management aspects that the mobile application allowed for during the interstage process. The acceptability findings can be organized through the following themes: time needed for mobile application, family as integrated members of care team, connectedness and confidence, and resolving technical issues.

Conclusions

Evaluation of the feasibility and acceptability of this technology from the perspective of family/caregivers is a critical component of human-centered design. The integration of technology-facilitated communication shows immense promise for patient populations undergoing vulnerable transitions in care. Future study is needed to determine the role mobile applications have in improved clinical outcomes, enhanced provider clinical-decision support, and family engagement in care.

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单心室生理患儿护理人员阶段间家庭监测移动应用的可接受性:迈向技术集成家庭管理

目的:单心室生理的婴儿经历了许多脆弱的过渡，分流依赖儿童的阶段间期是发病率和死亡率最高的时期。数据交换、生理监测以及临床医生和护理人员之间通过阶段间家庭监测的沟通至关重要。本研究的目的是报告一种技术增强的家庭监测移动应用程序的可接受性，用于单心室生理学儿童的期间家庭管理。设计和方法本研究采用定性描述性研究设计，招募了护理人员，这些护理人员是更广泛的质量改进项目的一部分，他们是专门为阶段间家庭监测时间段开发的移动健康应用程序的beta用户。11名护理人员参加了这项研究，这是从以人为本的设计角度对移动应用程序进行beta测试的早期阶段的一部分。总的来说，参与者对移动应用程序在阶段间过程中所允许的技术集成家庭管理方面的看法很好。可接受性调查结果可以通过以下主题进行组织:移动应用程序所需的时间，家庭作为护理团队的综合成员，连通性和信心，以及解决技术问题。从家庭/照顾者的角度评估该技术的可行性和可接受性是以人为本设计的关键组成部分。技术促进沟通的整合为处于护理脆弱过渡阶段的患者群体显示了巨大的希望。未来的研究需要确定移动应用程序在改善临床结果，增强提供者临床决策支持和家庭参与护理方面的作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal for Specialists in Pediatric Nursing 医学-护理

CiteScore

2.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： Linking science and practice by publishing evidence-based information on pediatric nursing and answering the question, ''How might this information affect nursing practice?'' The Journal for Specialists in Pediatric Nursing (JSPN) is the international evidence-based practice journal for nurses who specialize in the care of children and families. JSPN bridges the gap between research and practice by publishing peer-reviewed reliable, clinically relevant, and readily applicable evidence. The journal integrates the best evidence with pediatric nurses'' passion for achieving the best outcomes. The journal values interdisciplinary perspectives and publishes a wide variety of peer-reviewed papers on clinically relevant topics.