CREATING SAVIOR SIBLINGS: MORAL OR IMMORAL?

N. Althabhawi, Siti Fatimah Bt Safe’e, L. Yi
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Abstract

A savior sibling is a child conceived through in-vitro fertilization for the purposes of saving a sibling, who needs an organ or cell transplant because of a fatal genetic disorder. The procedure involves pre-implantation genetic diagnosis (PGD), which analyzes the embryos to detect potential genetic disorders prior to implantation. This is to reduce the possibility of passing such disorders to offspring. However, the creation of savior siblings also raises issues of morality. The idea that a child is born for the sole purpose of saving the lives of others, even if siblings, is not acceptable to some sections of society. This is because such a child is being born not for the sake of having it, but merely to be used as an instrument by the parents to save their sick child. Different countries, such as Malaysia, the UK, U.S. and Australia take various positions on whether or not to permit PGD. This article examines the rationale for the conduct of PGD, and, specifically, whether or not the act of creating a savior child can be considered as immoral. Importantly, the examination is undertaken with a focus on Immanuel Kant’s moral theory. The notion of the end in itself by Immanuel Kant demands that we always treat humanity not only as a means to an end, but also as an end in itself. Impliedly, parents should not conceive a child solely for the purposes of serving as a donor to a sick sibling, but should also genuinely desire that child. In other words, they should also respect the savior sibling and recognize its inherent value. In this way, the savior sibling is treated not merely as a means, but also as an end. By implication, the creation of savior siblings is not unethical as such, and should be permitted. A more significant factor that should be considered is how they are treated by parents after birth. This article uses a qualitative research methodology and relies on scholarly writings, such as books, journal articles, as well as laws and decided cases.
创造救世主兄弟姐妹:道德还是不道德?
救世主兄弟姐妹是通过体外受精怀上的孩子,目的是拯救因致命的遗传疾病而需要器官或细胞移植的兄弟姐妹。该程序包括胚胎植入前遗传学诊断(PGD),即在胚胎植入前分析胚胎以检测潜在的遗传疾病。这是为了减少将这种疾病传给后代的可能性。然而,救世主兄弟姐妹的诞生也引发了道德问题。一个孩子出生的唯一目的是拯救他人的生命,即使是兄弟姐妹,这种想法对社会的某些部分来说是不可接受的。这是因为这样一个孩子的出生不是为了拥有它,而仅仅是为了被父母用作拯救他们生病的孩子的工具。马来西亚、英国、美国和澳大利亚等不同国家对是否允许PGD持不同立场。本文探讨了PGD行为的基本原理,特别是,创造救世主孩子的行为是否可以被认为是不道德的。重要的是,考试的重点是伊曼努尔·康德的道德理论。伊曼努尔·康德的目的本身的概念要求我们不仅要将人性视为达到目的的手段,而且要将其本身视为目的。暗含的意思是,父母不应该仅仅为了给生病的兄弟姐妹捐精而生孩子,而应该真诚地渴望这个孩子。换句话说,他们也应该尊重救世主兄弟姐妹,并认识到其内在价值。这样,救世主兄弟姐妹不仅被视为一种手段,而且被视为一种目的。言下之意,创造救世主的兄弟姐妹并不是不道德的,应该被允许。应该考虑的一个更重要的因素是他们出生后父母如何对待他们。本文采用定性研究方法,并依赖于学术著作,如书籍,期刊文章,以及法律和已判决的案例。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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