Needs of patients in palliative care from the perspective of family members

Valentina Novak, Amer Ovčina, M. Neuberg, Tina Cikač
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Abstract

Introduction: Every person is a multidimensional being and certain needs arise from each dimension. In palliative care, the emphasis is on alleviating the physical, emotional, spiritual, and social needs of patients through a holistic approach. The aim of the study was to determine how family members recognize and experience the needs of their family members who are in palliative care. Methods: A qualitative research method was used. Data were obtained through interviews. Coding determined categories and codes that were later linked into grounded theory. For the purposes of the research, a semi-structured interview was conducted via the Google Meet application. The study involved 4 participants. Results: The analysis of the interviews defined four categories that talk about the segments of holistic care: physical, psychological, social and spiritual needs. The presented codes are supported by the statements of the participants. Discussion: Family members of patients in palliative care recognize the needs arising from all four dimensions of human – physical, psychological, social and spiritual needs, but in practice, the emphasis is still on caring for physical needs. Conclusion: The best results of palliative care are recognized in taking care of the physical needs of patients, especially pain, but more effort should be made in educating nurses and organizing changes to completely implement holistic nursing care in which psychological, social and spiritual needs are also taken care of
从家属角度看姑息治疗患者的需求
导言:每个人都是多维的存在,每个维度都有一定的需求。在姑息治疗中,重点是通过整体方法减轻患者的身体、情感、精神和社会需求。该研究的目的是确定家庭成员如何认识和体验姑息治疗家庭成员的需求。方法:采用定性研究方法。数据是通过访谈获得的。编码决定了类别和代码,这些类别和代码后来与基础理论联系在一起。为了研究的目的,通过Google Meet应用程序进行了半结构化访谈。这项研究涉及4名参与者。结果:通过对访谈的分析,确定了身体需求、心理需求、社会需求和精神需求四大类来讨论整体护理的各个环节。所呈现的代码由参与者的语句支持。讨论:姑息治疗患者的家属认识到从人的四个维度——身体、心理、社会和精神需求——产生的需求,但在实践中,重点仍然是照顾身体需求。结论:姑息治疗的最佳效果是满足患者的身体需求,尤其是疼痛需求,但应加强护士的教育和组织变革,全面实施兼顾心理、社会和精神需求的整体护理
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