Caregiving Across Contexts: Siblings of Children with Inherited Metabolic Disorders and Siblings of Typically Developing Children

Abstract

Background: Siblings of children with chronic diseases may ultimately become their sibling’s primary caregivers, yet research on their caregiving contributions during childhood is limited. Studies on sibling caregiving have largely focused on the roles and needs of adults caring for their siblings. Moreover, research on siblings of children with chronic illnesses or disabilities primarily examines their experiences and psychosocial outcomes. No known research explores the caregiving contributions of siblings of pediatric patients, or how these …