Reciprocity and its Association with Treatment Adherence in an Online Breast Cancer Forum

Abstract

Online health communities (OHCs) are increasingly relied upon by individuals exchanging social support for diagnoses and treatment regimens. It has been shown that social support from trusted relationships (e.g., family and friends) positively influence treatment adherence in offline environments, but much less is known about the online setting. In this study, we focus on how relationships established in an online breast cancer discussion board induce reciprocity (specifically in the form of reciprocal exchange of support) and its impact on adherence to a five-year hormonal therapy, a highly prevalent long-term treatment for breast cancers, with varying completion rates. We measure reciprocity as responses to forum posts to analyze interactions of over 6,000 patients and 100,000 responses. In doing so, we assess how reciprocity is related to time active in the OHC and the tones communicated by authors in their posts (e.g., emotions, writing styles and social tendencies). We further assess if such reciprocity is associated with treatment adherence. We find the volume of the reciprocity is positively associated with completing the five-year protocol, rather than the rate of the reciprocity or the fraction of the posts that received replies.