ITINERÁRIO TERAPÊUTICO E VIVÊNCIA DOS FAMILIARES E ADOLESCENTES COM DIABETES MELLITUS TIPO 1

Abstract

Objective: To know the experience of families and adolescents with type 1 diabetes mellitus (DM1) regarding the disease and the therapeutic itinerary to the public health care system. Methods: Qualitative exploratory research conducted from August to September 2015. Participants were ten adolescents with type 1 diabetes mellitus and their family members who participated directly in their care in three Health Centers of Santa Catarina - Brazil. Open interviews were carried out with adolescents and their family members in addition to field observation. Data underwent thematic analysis. The analysis resulted in the construction of three categories: feelings experienced after the discovery of the disease; living with type 1 diabetes mellitus and; health care system in monitoring the person with DM1. Results: The discovery of the disease is accompanied by concern and requires changes in the routine of the whole family. The biggest challenge relates to adjusting eating habits. Acceptance of the disease is complicated by the adolescence condition and living with diabetes is riddled with doubts about the future. In the health care system, the therapeutic choices of families and adolescents are focused on specialized care. Conclusion: The constitution of the therapeutic itinerary of adolescents and family members is marked by the use of several resources that go beyond the boundaries of health services, which should be prepared to support families living with this condition.