DIGITAL SUPPORT FOR A HUB-AND-SPOKE DISEASE NETWORK

Abstract

A disease network is a collaborative healthcare network focusing on a single disease, or a group of diseases, whether professional or formalized. A disease network may follow a “hub and spoke” model. Providing these networks with an efficient digital support poses some challenges. This paper describes the methodological approach to design the information system supporting such a disease network. After identifying a general model with network features, a use case related to the Italian Rare Cancer Network is reported.