Exploring the Lived Experience of Congestive Heart Failure Patients in Bulukumba Regency, Indonesia

Andi Baso Tombong, Irfanita Nurhidayah, Andi Nurlaela Amin
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Abstract

Congestive Heart Failure has become a major problem in the society worldwide with high prevalence, high mortality and morbidity, resulting in huge financing for care, carrying such a large burden on patients. In Indonesia, congestive heart failure has become one of the main killers. The prevalence of heart disease in Indonesia from year to year is increasing. Patients with CHF generally have various health problems, functional physical limitations, as well as behavioural and psychological symptoms that affect daily life and a long-term prognosis. The impact of heart failure on patients provides its own experience for sufferers. Therefore, CHF sufferers need sufficient coping to deal with the condition. This can certainly be obtained from a good support system as well, including family support as a care provider at home. To date, research that explores coping and family support specifically for people with heart failure and in-depth exploration of the experiences of people with CHF, especially in Bulukumba regency, has been limited. This study aims at exploring the experience of CHF patients in living their daily lives. This study used a qualitative approach with phenomenology design. The study had been conducted throughout September – October 2018. Using purposive sampling technique, three outpatient individuals with CHF was interviewed and the data was analysed by employing thematic analysis. The findings highlight three themes, including feeling after diagnosed with CHF, coping mechanism, and the importance of family support. This study suggest that approach towards providing health services to individuals with CHF should incorporate patient’s experience-based interventions to support their therapy adherence and to improve their quality of life.
探索印度尼西亚布卢昆巴县充血性心力衰竭患者的生活经验
充血性心力衰竭已成为世界范围内的重大社会问题,其高患病率、高死亡率和高发病率,造成了巨大的医疗费用,给患者带来了巨大的负担。在印度尼西亚,充血性心力衰竭已成为主要杀手之一。印度尼西亚的心脏病患病率逐年上升。慢性心力衰竭患者通常有各种健康问题、功能性身体限制,以及影响日常生活和长期预后的行为和心理症状。心力衰竭对患者的影响为患者提供了自己的经验。因此,CHF患者需要足够的应对能力来应对这种情况。当然,这也可以从一个良好的支持系统中获得,包括作为家庭护理提供者的家庭支持。迄今为止,专门探讨心力衰竭患者的应对和家庭支持的研究,以及深入探讨心力衰竭患者的经历的研究,特别是在Bulukumba县,一直很有限。本研究旨在探讨慢性心力衰竭患者的日常生活体验。本研究采用现象学设计的定性方法。该研究于2018年9月至10月进行。采用有目的抽样方法,对3例门诊CHF患者进行访谈,采用主题分析法对数据进行分析。研究结果强调了三个主题,包括诊断为CHF后的感受、应对机制和家庭支持的重要性。本研究表明,向CHF患者提供卫生服务的方法应纳入患者基于经验的干预措施,以支持其治疗依从性并改善其生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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