On Reminding and Forgetting: Care about Moral Responses in the Case of Alzheimer’s Disease

Adriana Wierzba
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Abstract

In this article, caring, remembering and sharing memory are presented as moral responses, the case study being Alzheimer’s disease (AD). Memory connects memories and images, while care connects individuals, which is an ethical issue. When a person’s memory is lost, the care of others becomes the only thread connecting them to the world. AD deprives a person of memories, body control, makes it impossible to remember, communicate, move, recognize the environment, and disrupts consciousness. Caring for a patient with a neurodegenerative brain disease requires constant reminding and reiteration; the presence of a caring person reminds of what the patient themselves can no longer remember. Lost memories do not mean that life or relational values have also lost their meaning. The description of the memory movement emphasizes the importance of repetition in the moral act. Highlighting the matter of care, also in scientific work, is the aim of this text. To care is to remember, on behalf of the AD patient, about the patient’s life. Within bioethical research, moral responses are an important point for projects which seek to improve the condition of patients—not only the condition of health but also the comfort of life. This improvement will not be possible without attentive, committed caregivers and their responsible attitude in the face of the phenomenon of memory loss.
论提醒与遗忘:阿尔茨海默病案例中的道德反应
本文以阿尔茨海默病(AD)为例,将关怀、记忆和分享记忆作为道德反应。记忆连接记忆和图像,而关怀连接个人,这是一个伦理问题。当一个人失去了记忆,对别人的关心就成了连接他们与世界的唯一纽带。阿尔茨海默症剥夺了一个人的记忆、身体控制,使其无法记忆、交流、移动、识别环境,并扰乱了意识。照顾患有神经退行性脑部疾病的病人需要不断地提醒和重申;一个有爱心的人的出现会提醒病人自己不再记得的事情。失去记忆并不意味着生活或关系价值也失去了意义。对记忆运动的描述强调了道德行为中重复的重要性。强调关心的问题,也在科学工作中,是本文的目的。关心就是代表阿尔茨海默病患者记住病人的生活。在生物伦理研究中,道德反应是寻求改善病人状况——不仅是健康状况,而且是生活舒适度——的项目的一个重要方面。如果没有细心、忠诚的照顾者和他们面对记忆丧失现象时负责任的态度,这种改善是不可能的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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