Blockchains’ federation: Developing Personal Health Trajectory-centered health systems

Abstract

The current world is a globalized and connected one. Even without moving around, a person interacts with personnel from different institutions treating him as a patient in their daily life. Each of these institutions keeps their patients’ data stored in their own information system, in an isolated way. Due to this, each patient has their data scattered among all these institutions and services with which she interacts along her life. This can complicate the take of the proper decision when the patient is under treatment. To solve this situation, new patient-centered health systems have been proposed as a replacement to the actual institution-centered ones, storing all health information of a patient into a unique global vision. However, some questions have arisen around the actual proposals, as who should store and maintain this vision of a given patient, and how should this information be made available for other systems. The proposal presented in this paper advocate for the achievement of a Personal Health Trajectory that can be useful both for patients and health professionals, using the concept of blockchains’ federation. The proposal has been validated using 5689 records from 50 different institutions, belonging to 1156 actors.