Technology-Driven Disruption of Healthcare & 'UI Layer' Privacy-by-Design

Marcelo Corrales Compagnucci, M. Fenwick, Helena Haapio, T. Minssen, E. Vermeulen
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引用次数: 3

Abstract

The use of digital technologies in healthcare is changing how medical treatments are developed by researchers, applied/practiced by medical professionals and experienced by patients. This article argues that a defining feature of this disruption is the emergence of new medical “apps” that leverage algorithm-based AI systems. As the use of such apps and AI wearables goes mainstream and new players — notably “Super Platforms” with digital rather than a medical expertise — enter the healthcare sector, the traditional means of providing medical services will be further transformed. These developments pose several challenges for regulators and other policymakers, most obviously, in the context of privacy and data protection. Here, we examine how the emerging field of Legal Design can provide a more transparent infrastructure that embeds relevant legal protections in the user interfaces of healthcare products and services. Such a user interface (UI) focused Privacy-by-Design approach offers a number of advantages, most obviously greater transparency, accountability and (consequently) human choice. The article offers several real- world examples of design patterns that illustrate the value of UI focused Privacy-by-Design in protecting individuals’ sensitive information, enabling people to make choices and retain control of their personal data. The piece concludes with some examples and reflects on the challenges specific to implementing Legal Design in an eHealth context.
技术驱动的医疗保健中断和“UI层”隐私设计
在医疗保健中使用数字技术正在改变研究人员开发医疗方法、医疗专业人员应用/实践和患者体验的方式。本文认为,这种颠覆的一个决定性特征是利用基于算法的人工智能系统的新医疗“应用程序”的出现。随着这些应用程序和人工智能可穿戴设备的使用成为主流,新的参与者——特别是拥有数字而非医疗专业知识的“超级平台”——进入医疗保健领域,传统的医疗服务提供方式将进一步转变。这些发展给监管机构和其他政策制定者带来了几项挑战,最明显的是在隐私和数据保护方面。在这里,我们将研究新兴的法律设计领域如何提供更透明的基础设施,在医疗保健产品和服务的用户界面中嵌入相关的法律保护。这种以用户界面(UI)为中心的隐私设计方法提供了许多优势,最明显的是更大的透明度、问责制和(因此)人类选择。本文提供了几个真实世界的设计模式示例,说明了以UI为中心的隐私设计在保护个人敏感信息方面的价值,使人们能够做出选择并保留对个人数据的控制。文章最后给出了一些例子,并反映了在电子健康环境中实施法律设计的具体挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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