Parental knowledge of chronic inflammatory bowel diseases in a child

Leona Cilar, Š. Polak, Barbara Kegl
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Abstract

Introduction: Chronic inflammatory bowel disease is a chronic lifelong disease with various triggers, intermediate longer and shorter remissions. Parents need to know what kind of nutrition the child with chronic inflammatory bowel disease needs because they must be able to make the right decisions regarding the child‘s diet. The right choice of diet gives a child enough energy in their daily and enables the quality life. They must enjoy a healthy balanced diet so that they receive all the nutrients the body needs. In our work, we presented chronic inflammatory bowel disease in children and parents’ assessment of the child’s quality of life. Methods: We chose a quantitative methodology to establish the impact of diet on the quality of life of the child with chronic inflammatory bowel disease. To describe and define the problem, we used a descriptive method. A structured measurement instrument was based on a review of the relevant foreign and domestic literature. Statistical data analysis was performed using descriptive and inferential statistics. Data were collected by a non-random and occasional sampling survey. Results: We found that most children whose parents participated in this research have Crohn’s disease (n = 20; 50%) and ulcerative colitis (n = 16; 40%). The type of food that is harmful to the child is fatty food (n = 33; 83%), followed by spicy food (n = 32; 80%) and acidic food (n = 10; 25%). According to the parents’ assessment, children with chronic inflammatory bowel disease have good (n = 22; 55%) health. We found that physicians provide parents with the most necessary nutrition information. Through evaluation of the parents, we found that there is no statistically significant correlation between the general assessment of a child’s health and the type of chronic inflammatory bowel disease (X² (2) = 5.925, p = 0.052). Also, there is no statistically significant correlation between the eating pattern and parents ’assessment of their child’s quality of life (U = 38.00, p. = 1.00). Discussion: The health care providers have an important role to play in giving appropriate information to parents to ensure the quality of life of the child. She teaches parents and children about living with chronic inflammatory bowel disease and emphasizes the importance of nutrition, which greatly contributes to a better quality of life.
父母对儿童慢性炎症性肠病的了解
简介:慢性炎症性肠病是一种慢性终身性疾病,有多种诱因,中间缓解期长,缓解期短。父母需要知道患有慢性炎症性肠病的孩子需要什么样的营养,因为他们必须能够对孩子的饮食做出正确的决定。正确的饮食选择给孩子足够的能量在他们的日常生活,使质量的生活。他们必须享受健康均衡的饮食,这样他们才能获得身体所需的所有营养。在我们的工作中,我们介绍了儿童慢性炎症性肠病和父母对儿童生活质量的评估。方法:我们选择定量方法来确定饮食对慢性炎症性肠病儿童生活质量的影响。为了描述和定义这个问题,我们使用了描述性的方法。在查阅国内外相关文献的基础上,设计了一种结构化的测量仪器。统计数据分析采用描述统计和推理统计。数据是通过非随机和偶尔抽样调查收集的。结果:我们发现大多数父母参与本研究的儿童患有克罗恩病(n = 20;50%)和溃疡性结肠炎(n = 16;40%)。对儿童有害的食物类型是高脂肪食物(n = 33;83%),其次是辛辣食物(n = 32;80%)和酸性食物(n = 10;25%)。根据家长评价,慢性炎症性肠病患儿有良好(n = 22;55%)的健康状况。我们发现,医生会向家长提供最必要的营养信息。通过对家长的评估,我们发现儿童健康的一般评估与慢性炎症性肠病的类型没有统计学意义(X²(2)= 5.925,p = 0.052)。此外,饮食模式与父母对孩子生活质量的评估之间没有统计学上的显著相关性(U = 38.00, p = 1.00)。讨论:卫生保健提供者在向父母提供适当的信息以确保儿童的生活质量方面发挥着重要作用。她教导父母和孩子如何与慢性炎症性肠病生活,并强调营养的重要性,这极大地有助于提高生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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