Pediatric Hematopoietic Cell Transplantation: A Longitudinal Assessment of Health-Related Quality of Life of Pediatric Donors.

IF 1.6 3区 心理学 Q3 PSYCHOLOGY, CLINICAL
Sharon H J Hou, Mehak Stokoe, Hailey Zwicker, Morgan Young-Speirs, Wendy Pelletier, Gregory M T Guilcher, Melanie Khu, Fiona S M Schulte
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引用次数: 1

Abstract

Pediatric donors may be at increased risk of psychological and social challenges following hematopoietic cell transplantation (HCT). Through a retrospective chart review, we evaluated the health-related quality of life (HRQL) of pediatric donors over time and examined facilitators and barriers to implementing a longitudinal psychosocial assessment. Fifty-one pediatric donors (M = 10.7 years, SD = 3.7) completed an HRQL questionnaire across six time points (T1 to T6) from prior to donation to 2 years after. Change in mean scores was assessed using a linear mixed-effect model for repeated measures design. Facilitators and barriers to implementation were examined. HRQL of pediatric donors improved between T1 and T6 with significant change in physical, emotional, and overall functioning. Facilitators to retention included the support of a clinical coordinator. Barriers to implementation included the absence of infrastructure to maintain contact with pediatric and their families. HRQL of pediatric donors of HCT improved steadily over time. Pattern of results suggests a need to further explore factors that contribute to change across time. Development of a longitudinal standardized assessment protocol that can be prospectively and feasibly implemented is integral to supporting the well-being of this group.

Abstract Image

儿童造血细胞移植:儿童捐献者健康相关生活质量的纵向评估。
造血细胞移植(HCT)后,儿童捐献者可能面临更大的心理和社会挑战风险。通过回顾性图表回顾,我们评估了一段时间以来儿科捐赠者的健康相关生活质量(HRQL),并检查了实施纵向心理社会评估的促进因素和障碍。51名儿科捐献者(M = 10.7年,SD = 3.7)在捐赠前至捐赠后2年的6个时间点(T1至T6)完成了HRQL问卷调查。使用重复测量设计的线性混合效应模型评估平均得分的变化。审查了执行的促进者和障碍。儿童捐献者的HRQL在T1和T6之间有所改善,身体、情绪和整体功能发生了显著变化。留用的促进者包括一名临床协调员的支持。实施的障碍包括缺乏与儿科及其家人保持联系的基础设施。随着时间的推移,HCT的儿科捐献者的HRQL稳步改善。结果模式表明,需要进一步探索有助于随时间变化的因素。制定一个可前瞻性和可行性实施的纵向标准化评估方案是支持这一群体福祉的组成部分。
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来源期刊
CiteScore
4.00
自引率
4.50%
发文量
93
期刊介绍: Journal of Clinical Psychology in Medical Settings is an international forum for the publication of peer-reviewed original papers related to all areas of the science and practice of psychologists in medical settings. Manuscripts are chosen that have a broad appeal across psychology as well as other health care disciplines, reflecting varying backgrounds, interests, and specializations. The journal publishes original research, treatment outcome trials, meta-analyses, literature reviews, conceptual papers, brief scientific reports, and scholarly case studies. Papers accepted address clinical matters in medical settings; integrated care; health disparities; education and training of the future psychology workforce; interdisciplinary collaboration, training, and professionalism; licensing, credentialing, and privileging in hospital practice; research and practice ethics; professional development of psychologists in academic health centers; professional practice matters in medical settings; and cultural, economic, political, regulatory, and systems factors in health care. In summary, the journal provides a forum for papers predicted to have significant theoretical or practical importance for the application of psychology in medical settings.
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